The Toll of Advocacy On Mental Health

A stressed and duress brain depicted in the form of digital art. The brain is shown as being red and pulsating with veins visible.

Advocacy is not complaining.

Constantly advocating for our rights can take a toll on our mental health. Fighting for equal access and accommodations should not be seen as "complaining" or "problematic," but rather as a necessary step to ensure that we are able to live our lives. Yet, too often advocacy is dismissed as a nuisance by those who aren’t able or refuse to understand our lived experience.

Advocacy is about educating, raising awareness, and creating change. Those who view it as a problem do so from a place of privilege. Having the audacity to ask for equality isn’t complaining. What too many advocates know is that if laws were upheld, if equity were normative, if the 61 million disabled Americans or 1.3 billion worldwide felt heard and understood, we wouldn’t have to be as persistent as we are to effect change.

Persistence often gets mislabeled as a problem, when in actuality the problem itself is the inequity, and injustice we grapple with daily. Too often when faced with the question of which problem is easier to solve, the scale overwhelmingly tips toward silencing us as advocates. The inequity we’re laser focused on addressing is dismissed as either too costly, too time-consuming, or too unimportant to solve.

Advocacy can sometimes be a threat to our psychological and physical safety. As a recent case in New York City highlights, we may face significant challenges when seeking reasonable accommodations for our disability. The New York Post reports a woman is facing eviction after requesting reasonable accommodations for her disability following a note from her co-op stating she “complained" too much after initial requests were ignored.

The optics and power imbalances are also hard to ignore. While some advocates are thought to be complaining, the same complaint from someone in a position of power gains traction. As Amanda Morris of The Washington Post reported Friday, The Mobile Act, aimed at easing air travel for disabled passengers, has gained bipartisan support in Congress thanks to the leadership and advocacy of Senator Duckworth who has led the charge for equitable travel since joining Congress in 2013.

Advocating for our rights and equal access should not be seen as a burden or a complaint. It is our right as individuals with disabilities to have equal access to housing, employment, and other opportunities. However, it is important to recognize the toll that constantly fighting for our rights can take on our mental health and well-being.

A survey conducted by the Disability Rights Bar Association hosted by Burton Blatt Institute (BBI) at Syracuse University found 77% of disabled respondents reported experiencing discrimination, and 73% reported experiencing mental health issues related to that discrimination.

It is time for society to recognize the importance of accessibility and the rights of disabled individuals and to work toward creating a more inclusive and supportive world for all.

#MentalHealthAwareness

From The Classroom To The Boardroom: A Journey of Disability Mental Health

A disabled wheelchair user sits with his hands covering his face in frustration.

As I reflect on Mental Health Awareness Month, I am reminded of the ongoing struggles that disabled people face daily. For those of us living with disabilities, the fight for equal rights and accommodations often feels like an uphill battle. From the classroom to the workplace, we're fighting for our right to exist as we are.

I've written previously about the lack of planning and forethought that goes into disabled people's evacuation plans in active shooter drills. To quote Emily Ladau in a recent HuffPost article, "Their emergency plan was really to not have an emergency plan. It really made me feel like they couldn't be bothered to protect me, and it was very much every person for themselves."

And the "Run, Hide, Fight" protocol advised by federal agencies provides little solace to disabled people who are often not able to do any of the above. Instead, more often than not, we're advised to wait. Wait and hope that we make it out alive simply because protocols for us don't exist.

I think of the long-term mental health impact that has had on me. That from a young age, society at large considers me disposable.

Then there's the workplace. A newly released report by the U.S. Department of Labor and the Job Accommodation Network found that nearly half of workplace accommodations made for people with disabilities can be implemented at no cost to employers. Workplace accommodations are often simple and easy to implement, and yet so many of us struggle due to red tape; unnecessary requests for medical documentation, disclosure of our disability and limitations to people who have no business knowing, and an often misguided belief that an accommodation makes things "unfair" simply because we're trying to level the playing field.

Within the federal government, switching agencies is advertised as a fairly seamless process. Everything follows you: sick and annual leave balances, health insurance, and your position on the General Schedule pay scale. However, any documentation pertaining to reasonable accommodations does not, which means switching jobs comes with the exhausting task of starting from scratch.

We know what we need to be successful. The mental health of employees everywhere would be much improved if employers learned to say "yes" instead of "prove it."

So, what do these two experiences have in common? They both demonstrate the unfortunate reality that disabled people are often left behind, fighting for our survival in myriad ways. As we celebrate Mental Health Awareness Month, we must remember that the struggles faced by disabled people are directly linked to mental health.

To truly combat mental health stigma, we must first acknowledge the lived experiences of disabled people. It is essential to recognize that our battles are fought not only in the classrooms and workplaces but also in the broader social structures that often marginalize and dismiss our needs.