The Pandemic's Impact on Workplace Inclusion: Lessons from the RVO Health Panel

A Zoom screenshot showing Disability Advocate Ryan Honick, and fellow RVO Health panelists, Alina Sharon, Ryan McKenna, Robin Hough, and Jessica Simon as part of a DEI in the workplace discussion.

Yesterday, as part of National Disability Employment Awareness Month, I had the distinct honor of joining a panel with the dynamic team from RVO Health. The topic? A subject close to my heart: diversity, equity, inclusion, and access in the workplace, especially in the light of the pandemic and its aftermath.

Firstly, I'd like to extend my heartfelt gratitude to Alina Sharon, Ryan McKenna, Robin Hough, and Jess (Leavitt) Simon. The depth of our conversation, the insights shared, and the commitment to fostering an inclusive environment was truly commendable. It's not every day that you get to be part of such an enlightening discussion, and I am continually encouraged by the positive steps that RVO Health is taking.

I've seen firsthand the challenges and opportunities that come with fostering an inclusive environment. The pandemic has only heightened the need for workplaces to be more adaptable, understanding, and inclusive. Jess (Leavitt) Simon captured this sentiment perfectly, stating, "We can't unring the bell of COVID. COVID completely disrupted and changed the way of work. The employers that are going to retain and attract the best talent are going to have to figure out how to do it differently." 

From my personal journey, I know the importance of conversations like these to deepen understanding and empathy and truly make a difference. True inclusivity begins as a cultural attitude and a commitment to continual dialogue about the needs and contributions of every employee. The pandemic brought to light the importance of mental health, flexibility, and the need for employers to be more understanding and accommodating.

RVO Health's commitment to these values is evident, and I am excited to see the strides they will make in the future. The panel discussion was a testament to the fact that when organizations and individuals come together with a shared vision, real change is possible.

To everyone who joined us for the panel, thank you for being part of this important conversation. Let's continue to push boundaries, challenge norms, and create workplaces where everyone feels valued and included.

Why Relaxed Dress Codes Can Be a Game-Changer for People with Disabilities

Sen. John Fetterman (D-Pa.) arrives for a vote at the U.S. Capitol May 1, 2023.

In light of the recent changes to the Senate's dress code, as detailed by Axios and Rolling Stone, it's essential to view this shift as more than just a fashion statement. This change, announced by Senate Majority Leader Chuck Schumer and reportedly inspired by Senator John Fetterman of Pennsylvania, is a reflection of a reasonable accommodation for someone with a disability.

Sen. Fetterman, who has been candid about his struggles with depression, is protected under the Americans with Disabilities Act. Changes to dress codes are considered a reasonable accommodation, and this should be seen as a progressive step for the disability community. Societal standards, often set by non-disabled neurotypical individuals, can be both physically and mentally taxing for those with disabilities. As someone with cerebral palsy and fine motor challenges, I can attest to the significant energy and mental effort required to don formal attire. My clothing choices are often a reflection of my energy levels, not my work ethic or capability.

Senator Susan Collins humorously threatened to wear a bikini to work in response to the relaxed dress code. Meanwhile, Senator Schumer officially altered the rules around appropriate attire, instructing the Sergeant at Arms to cease enforcing guidelines requiring business attire on the floor. This change allows lawmakers like Pennsylvania’s John Fetterman to embrace casual clothing without violating protocol. Fetterman's attire has been a part of his image throughout his political career. After taking a medical hiatus to seek treatment for clinical depression, he's chosen comfort over costume. This decision, though not directly referencing Fetterman, has irked some Republicans, leading to criticism of him.

In the disability community, we often use "spoons" as a metaphor to describe our energy consumption. It can take someone with a disability significantly more energy to accomplish the same tasks as our non-disabled counterparts. A strict dress code can be challenging for people with disabilities to maintain consistently. My personal experience of ditching formal wear for the office has resulted in increased energy that I can redirect toward my actual work. Being comfortable allows me to be more relaxed and focused. I applaud Senator Schumer for his recent decision and hope that those opposing this change can learn empathy.

Republicans Are Melting Down Over the Relaxed Senate Dress Code

Why ADA Compliance Doesn't Always Mean Accessibility

Wheelchair users are seen in the Rose Garden at the White House as President Biden delivers remarks during an ADA celebration.

For the vast majority of my life I've navigated the intricate maze of the Americans with Disabilities Act (ADA). Designed to ensure equal access for all, the ADA has been instrumental in ensuring the rights of disabled people. Yet, in practice, the reality often falls short of the promise. Julie Reiskin, a fellow wheelchair user, captured this sentiment perfectly, telling USA TODAY, "It would be really nice if I could look at a website and have reliable information."

This disparity between expectation and reality isn't just about websites. It extends to physical spaces too. For instance, booking an ADA-compliant hotel room might promise a slightly bigger bathroom, but what's the use if I can't even enter the room due to a heavy door or lack of actuators? This isn't just an inconvenience; it's a barrier that hinders true accessibility.

My personal experiences mirror those of many others in the disability community. Just this summer, I voiced my concerns about a local Starbucks, a place I've frequented for nearly a decade. Their response? They were "in compliance with the ADA." But true access goes beyond mere compliance. Deborah Laufer's journey, involving over 600 cases filed for similar reasons, and now a pending Supreme Court of the U.S. case remarked, "I sometimes ended up sleeping in my car because I could not get an accessible room at a hotel."

The crux of the matter is that the ADA should be viewed as a starting point, not the end goal. True accessibility and inclusion mean going beyond the minimum requirements. As Shira Wakschlag of The Arc of the United States emphasized to Disability Scoop, "ADA testers are essential to ensuring the rights of people with disabilities are enforced and protected."

In our quest for a more inclusive world, let's not just aim for the floor; let's reach for the ceiling. Let's not just be compliant; let's be truly accessible.

Following the Supreme Court overturning of affirmative action earlier this summer, many disability advocates, myself included, expressed concerns about the ADA being next on the chopping block. Sadly, it looks as though our fears were not unfounded.

I invite you to join the conversation, share your experiences, and together, let's push for a world where accessibility is not just a legal requirement but a heartfelt commitment.

'Sleeping in my car.' This Supreme Court case could change how disabled Americans book hotel rooms

Adaptable, Flexible, Unstoppable: Eddie Ndopu's Message of Hope and Strength

Time Magazine Person of the Week Cover with Eddie Ndopu

In our journey through life, I find myself reflecting on the dual narratives that society often imposes on those with disabilities. On one hand, there's the story of overcoming, of achieving not because of our challenges but in spite of them. On the other, there's the reality we live every day: it's not our disabilities that hinder us, but society's ableist attitudes and approaches.

Eddie Ndopu, a United Nations and disability advocate living with spinal muscular atrophy encapsulates this sentiment perfectly. As he rightly points out in a recent interview with TIME, "disability has been the greatest offering and gift of my life." It's a sentiment I resonate with deeply. Our challenges make us adaptable, flexible, and give us a unique lens through which we view the world.

However, the societal narrative often deviates from this perspective. We're told there's a "standard" way of doing things, and any deviation is seen as "special." Requests for reasonable accommodations or basic access rights are often met with resistance, with claims of high costs or the unfairness of providing for one and not for all. This mindset fails to distinguish between equity and equality. While equality ensures everyone gets the same resources, equity ensures everyone gets the resources they need to succeed. And for those facing challenges, this often means working twice as hard for half the recognition.

The truth is, as Eddie Ndopu highlights, "the more barriers that I have been able to break down, the more barriers have awaited me on the other side." This resonates deeply with me. Despite our accomplishments, we're still faced with systemic inequalities and prejudices. We're often seen as "less than" or "incapable" due to our challenges. But as Eddie and countless others have shown, our challenges can be our greatest strengths.

In many ways, living with disabilities is like playing a never-ending game of whack-a-mole. As soon as one challenge is overcome, another pops up. But it's essential to keep the conversation going. The more we talk about our experiences, advocate for our rights, and normalize these discussions in all spheres of life, the closer we get to a world where challenges, accommodations, and access are seen as standard, not special.

As we continue to advocate, let's remember that our challenges don't define us – they refine us. They make us stronger, more resilient, and more empathetic. And as we push for a more inclusive world, let's celebrate not just our achievements but the unique perspectives and strengths that come with our experiences.

Eddie Ndopu on How Disability Helped Him Rethink Excellence

Motorized Wheelchair User Sets Unofficial Speed Record in Grocery Store

Blurred picture of a wheelchair user in a grocery store.

I'm thrilled to share that my recent story has been published on The Squeaky Wheel, a satirical platform that offers a unique perspective on disability news. This time, we're diving into an amusing incident inspired by real-world experiences that unfolded in a small town grocery store.

Imagine this: you're in your motorized wheelchair, zipping down the cereal aisle of your local grocery store. You're focused, you're efficient, and you're fast. So fast, in fact, that you've unofficially set a speed record, causing a literal Kellogg Company frosted flake flurry in your wake. But not everyone is amused. A retired schoolteacher, known for his acute observations, is caught off guard. He challenges you, asking if you have a license for your wheelchair. You can't help but chuckle at the absurdity. After all, last you checked, shopping for General Mills Cheerios wasn’t a licensable activity.

Believe it or not, wheelchair users hear such commentary daily.

This story, and all of The Squeaky Wheel, serves as a reminder that disability can be, and is, funny. It's a part of our everyday lives, and humor helps us navigate the world. So, let's continue to share, laugh, and enjoy these stories, even when the national spotlight on Disability Pride Month has faded. The work continues, and so does the laughter.

Special thanks to Steven Verdile for launching this much-needed outlet for disability humor to share the lighter side of disability.

Motorized Wheelchair User Sets Unofficial Speed Record in Grocery Store

Barbie Movie: A Step Forward or a Missed Opportunity for Disability Representation?

Ryan, Rachael, and Pico pose in front of the poster for Barbie Movie.

This past weekend, my girlfriend and I joined the throngs of Mattel, Inc. Barbie enthusiasts to watch the much-anticipated Barbie movie. As a disability advocate and a fan who may have unapologetically bought "KENough" merch, I was particularly interested in the representation of Wheelchair Barbie, a character that has been a beacon of hope for many young individuals who use wheelchairs.

The movie was entertaining, and the diversity representation was commendable. However, I couldn't help but notice that Wheelchair Barbie, despite her presence in the opening dance scenes, had no dialogue throughout the movie. This was a stark reminder of the reality that, as Madison Lawson writes in her Teen Vogue op-ed, "People with disabilities are rarely featured as the ideal beauty standard, and are often used as objects of inspiration to make non-disabled people feel better about themselves."

The lack of dialogue for Wheelchair Barbie speaks volumes about the broader perception of disability in our culture. It's as if our voices are not deemed important enough to be heard, even in a movie that prides itself on diversity and inclusion.

The struggles faced by Senator Tammy Duckworth, a disability advocate and wheelchair user, further underscore the challenges we face. As reported by POLITICO, Senator Duckworth was unable to watch the Barbie movie due to a broken elevator at the theater. This incident highlights the persistent accessibility issues that prevent full participation in society for individuals with disabilities.

On a more positive note, a resurfaced video of Margot Robbie, the star of the Barbie movie, communicating with a deaf fan at the movie premiere in Amsterdam, has been making rounds on the internet. While many outlets have praised Robbie's actions, I believe that such acts of inclusion should be normalized rather than sensationalized. Inclusion is not a favor or an act of charity; it is a basic human right.

As we wind down Disability Pride Month, let's remember that representation matters, but it's not enough. We need to ensure that our voices are heard, our experiences are acknowledged, and our rights are respected. Let's strive for a world where inclusion is the norm, not the exception.

The Barbie movie, with its appeal and lessons, transcends the gender spectrum. It's a reminder that stories of inclusion and diversity are not just for girls or boys, but for everyone.

Wheelchair Barbie Is a Lesson in the Power of Showing Up Where People Don't Think You Belong

Embracing Our Identities: A Message to My Disabled Peers

The disability pride flag. Five vertical bands (Green, Blue, White, Yellow, Red) on a Black background.

As we roll into Disability Pride Month, I want to send a message of love and empowerment to my fellow disabled individuals. As a wheelchair user and service dog handler to Canine Companions® Pico, I know the challenges we face in a world that often seems designed without us in mind.

Keely Cat-Wells, in her Forbes article beautifully captures the essence of what I want to convey: “Be proud. Navigating this world filled with ableism is tough and navigating our conditions can also be a challenge. I am constantly learning that we can be proud of being Disabled and yet still have a complicated relationship with our disabilities.”

Yes, let’s be proud. Our disabilities are a part of who we are, and they shape our experiences and perspectives. We have the right to celebrate our lives, our achievements, and our identities as disabled individuals.

But let’s also acknowledge that it’s okay to have a complicated relationship with our disabilities. It’s okay to have days when we struggle. It’s okay to ask for help. It’s okay to be human.

Relationships with disabilities are complex. There are days I wouldn't trade it for anything, and there are days I'm frustrated, exhausted, and left without spoons simply due to the overwhelm of daily management.

This month, let’s also celebrate the change-makers among us. Let’s honor the tireless work of disabled activists who have paved the way for a more inclusive society. People like Emily Ladau, Kristen Parisi, Nikki Nolan, Maria Town, Nadia Bodkin, Rebecca Cokley, Meryl Evans, CPACC (deaf), Jake Hytken, Julie Harris, Tiffany A. Yu, MSc and Jamie Shields who have been relentless in their advocacy for disability rights. I owe so much of my own strength to them and countless others for their wisdom and wit surrounding disability. Our community is one of continued support, encouragement, and shared experiences for which I will be forever grateful.

Let’s use this upcoming month to not only celebrate but also to educate. Let’s share our stories, our challenges, and our triumphs. Let’s show the world the beauty, diversity, and strength of the disabled community.

And to our non-disabled allies, we ask you to join us in this celebration. Listen to our stories, support our causes, and work with us to build a world that is inclusive and accessible to all.

Celebrating Disability Pride Month: What's Your Role?

From Inclusion to Exclusion: The Impact of Remote Work Reduction on Disabled Employees

A desktop computer sitting on top of a wooden desk.

As we navigate the post-pandemic world, many companies, including Farmers Insurance Group, Meta, The Walt Disney Company, Lyft, and Amazon, are scaling back remote work options. This decision, while seemingly benign, has profound implications for employees with disabilities.

The shift to remote work during the pandemic was a boon for many disabled employees. It eliminated commuting challenges, provided a comfortable work environment, and offered flexibility for medical appointments. The rollback of remote work threatens to undo these gains, potentially pushing disabled employees out of the workforce.

Meta's recent decision to require employees to return to the office three days a week starting in September is a case in point. A Meta spokesperson stated, "We're committed to distributed work, and we're confident people can make a meaningful impact both from the office and at home." However, the decision to limit remote work options contradicts this statement, particularly for disabled employees for whom "home" is not just a convenience, but a necessity.

Mark Zuckerberg, Meta's CEO, hinted at this change when he said that their internal analysis showed engineers who work in person "get more done." This perspective, while potentially valid for some, fails to consider the unique circumstances of disabled employees. For them, the ability to work remotely isn't about productivity alone; it's about accessibility and inclusion.

The scaling back of remote work options by these major companies sends a disheartening message to disabled employees: our needs are secondary. It's a stark reminder that the corporate world still has a long way to go in truly embracing diversity and inclusion.

We must advocate for a more inclusive approach to work arrangements, one that recognizes the unique needs and contributions of all employees, including those with disabilities.

Remote work should not be seen as a temporary pandemic measure, but as a permanent option that can foster a more diverse and inclusive workforce.

A New CEO Says Employees Can’t Work Remotely After All, and They Revolt