Invisible Disabilities

The Pandemic's Impact on Workplace Inclusion: Lessons from the RVO Health Panel

A Zoom screenshot showing Disability Advocate Ryan Honick, and fellow RVO Health panelists, Alina Sharon, Ryan McKenna, Robin Hough, and Jessica Simon as part of a DEI in the workplace discussion.

Yesterday, as part of National Disability Employment Awareness Month, I had the distinct honor of joining a panel with the dynamic team from RVO Health. The topic? A subject close to my heart: diversity, equity, inclusion, and access in the workplace, especially in the light of the pandemic and its aftermath.

Firstly, I'd like to extend my heartfelt gratitude to Alina Sharon, Ryan McKenna, Robin Hough, and Jess (Leavitt) Simon. The depth of our conversation, the insights shared, and the commitment to fostering an inclusive environment was truly commendable. It's not every day that you get to be part of such an enlightening discussion, and I am continually encouraged by the positive steps that RVO Health is taking.

I've seen firsthand the challenges and opportunities that come with fostering an inclusive environment. The pandemic has only heightened the need for workplaces to be more adaptable, understanding, and inclusive. Jess (Leavitt) Simon captured this sentiment perfectly, stating, "We can't unring the bell of COVID. COVID completely disrupted and changed the way of work. The employers that are going to retain and attract the best talent are going to have to figure out how to do it differently." 

From my personal journey, I know the importance of conversations like these to deepen understanding and empathy and truly make a difference. True inclusivity begins as a cultural attitude and a commitment to continual dialogue about the needs and contributions of every employee. The pandemic brought to light the importance of mental health, flexibility, and the need for employers to be more understanding and accommodating.

RVO Health's commitment to these values is evident, and I am excited to see the strides they will make in the future. The panel discussion was a testament to the fact that when organizations and individuals come together with a shared vision, real change is possible.

To everyone who joined us for the panel, thank you for being part of this important conversation. Let's continue to push boundaries, challenge norms, and create workplaces where everyone feels valued and included.

Snapshots of Service: Pico's Dedication Amidst a Career of Change

Pico stands behind the American flag for his professional portrait at the US Department of Labor

As I sit at my desk, the hum of assistive technology filling the room, I'm reminded of the many challenges and triumphs I've faced as a disability advocate and federal employee. My early days at the U.S. Department of Health and Human Services (HHS) saw me promoting the newly minted Obamacare, a transformative period in our nation's healthcare landscape. Later, at the USPTO, I was fiercely protecting intellectual property, ensuring the sanctity of innovation and creativity. Today, I promote the impactful mission of the U.S. Department of Labor, protecting our nation's workforce.

Yet, amidst these professional milestones, there's been a constant, loyal presence by my side for the past decade - my service dog, Pico.

September marks National Service Dog Month, a time to honor the incredible animals that transform lives daily. Pico, a graduate of Canine Companions®, joined me after my tenure at HHS. As a wheelchair user with a visual impairment, navigating the world can be daunting. But with Pico, every challenge becomes surmountable. His unwavering support, especially in the workplace, has been nothing short of amazing.

Invisible disabilities, like my chronic pain, often go unnoticed. But Pico sees it all. He senses my discomfort, offering solace with a nuzzle or a comforting presence by my side. He's more than just a service dog; he's a confidant, a protector, and a never-ending source of comedy.

Recently, thanks to the talented Shawn Moore, Pico and I had a moment that encapsulated our journey. As the camera clicked, capturing Pico in his full professional glory, I felt a swell of pride. It was a moment of recognition, not just for Pico's service but for every service animal that has made a difference in someone's life.

To Pico, I say, "Thank you." Thank you for your unwavering service, for the moments of joy, and for the challenges we've overcome together. Here's to many more years of partnership, advocacy, and making a difference.

Join me in celebrating National Service Dog Month. Share your stories, honor these incredible animals, and let's continue the conversation on the importance of accessibility and inclusion in every workspace.

The Unseen Battle: Chronic Pain and the Performance of Wellness

Ryan and Rachael smile in front of a Matchbox 20 Concert Poster at Jiffy Lube Live on July 27, 2023

Last night, I attended a Matchbox 20 concert at Jiffy Lube Live, an event that had been on my calendar since before the pandemic. The anticipation was high, but so was my pain. A sudden flare of chronic pain, the severity of which I hadn’t experienced in months, hit me just hours before the show. The unpredictability of disability and chronic pain is a constant reminder that it's always with us, even during our most anticipated moments.

As Brijana Prooker beautifully articulated in her POPSUGAR essay, living with an invisible illness often involves a performance of wellness. We mask our pain with smiles, energetic demeanors, and a relentless positivity that hides our suffering. We do this to make others comfortable, to fit into societal expectations of health and normalcy. But at what cost?

For years, I too performed wellness. I hid my pain behind an energetic bubbly persona, concealing my struggle from the world. But as Brijana points out, this performance can lead to further harm. "While I may have succeeded in looking healthy, it had only made me sicker," she writes. The energy we expend to appear "well" can exacerbate our conditions, leading to more pain, more fatigue, and a deeper sense of isolation.

The pressure to appear healthy extends to our social interactions. We extend visits beyond our limits, pushing through the pain to avoid disappointing others. We hide our needs, our pain, and our limitations, often at great personal cost. As Brijana explains, a casual hangout can cost us "days, possibly weeks in bed — and so many spoons, we'd have to wait until next month for them to replenish."

But it's time to break free from this cycle. It's time to prioritize our health over societal expectations and other people's comfort. It's time to make our invisible disabilities visible, to share our experiences openly and honestly. It's time to stop performing wellness and start living our truth.

As we near the end of Disability Pride Month, let's remember that our worth isn't determined by our appearance or wellness. Our worth lies in our resilience, our strength, and our ability to navigate a world that often overlooks us. Our worth lies in our authenticity, in our courage to share our stories, and in our determination to advocate for a more inclusive and understanding world.

I Spent Years Trying to Hide My Chronic Illness For Others' Comfort. No More.

Beyond Compliance: The Art of Fostering Accessibility in Your Organization

Business colleagues discussing architecture project in office.

Honored once again to be featured as a LinkedIn #TopVoice for Disability as we continue the fight for equality.

As we continue celebrating Disability Pride Month, let's address a critical issue: workplace accessibility. This isn't just about compliance; it's about fostering an environment where everyone, regardless of abilities or neurodiversity, can thrive.

A recent Forbes piece by Bérénice Magistretti notes that "80% of disabilities are invisible," including conditions like visual impairment, mental health issues, and chronic diseases. These often go unrecognized, leading to a lack of understanding and support.

Organizations can initiate change by acknowledging these invisible disabilities. The Hidden Disabilities Sunflower 💜 network provides a discreet method for individuals to indicate they have a non-visible disability, adopted by thousands of businesses worldwide.

However, recognition is just the first step. To genuinely prioritize accessibility, organizations must provide reasonable accommodations. These can range from assistive technology for those with visual impairments to flexible work arrangements for those with chronic conditions. The U.S. Department of Labor's Job Accommodation Network reported in May that nearly half of these accommodations can be implemented for free.

Disclosing a disability can be intimidating due to fear of discrimination. However, open communication can lead to better support and understanding, fostering a more inclusive workplace. When an employee chooses to disclose a disability, believe them. As a leader your first question should be "How can I support you in your role?" Normalize saying 'yes' instead of 'prove it.'

Psychology Today reports that "while 25 percent of employees self-identify as having a disability...most companies report that just 4 to 7 percent of their employees are people with disabilities." The latest Disability:IN 2023 DEI echoed these findings with a median 4.6 percent of companies reporting self identification of disabled employees. This discrepancy underscores the need for more open dialogue and understanding.

Furthermore, we must remember the importance of creating accessible physical spaces and promoting diversity and inclusion initiatives. Employers should ensure that their facilities accommodate individuals with physical disabilities. Encouraging the active participation of disabled employees in decision-making processes can foster a sense of belonging and representation.

Let's use Disability Pride Month as a catalyst for change, making our workplaces more inclusive and accessible for all. Prioritizing accessibility is an ongoing journey that requires commitment, adaptation, and continuous learning.

Why We Need To Bring More Visibility To Invisible Disabilities And Illnesses

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