Beyond the 1%: Amplifying Disabled Voices in Hollywood and Halls of Power

From left: Zayre Ferrer, Monica Cecilia Lucas and Gisselle Legere.

In the vibrant tapestry of our society, the disabled community weaves a narrative often left unexplored, yet profoundly impactful. As we celebrate National Disability Employment Awareness Month, let’s delve into the realms of representation, adaptability, and the stark disparities in political representation for disabled individuals.

“Roughly 20% of Americans live with a disability, yet less than 1% of Hollywood writers are disabled,” a stark revelation from the Inevitable Foundation. The recent Writers Guild of America West deal, promises to address specific issues impacting disabled writers in Hollywood most. Gisselle Legere, a Cuban American writer, heralded the WGA’s victory in setting a minimum number of writers who must be staffed on shows as the “biggest win,” illuminating a path toward more inclusive representation in the writers' rooms.

In the political arena, the narrative unfolds similarly, yet with its unique challenges. ChrisTiana ObeySumner MPA, MNPL, a multi-disabled Seattle City Council candidate, embodies the resilience and determination that disabled candidates bring to the political table. Yet, systemic barriers and ableist backlash often stymie their journey. A mere one in 10 elected officials have disabilities, according to a 2018 study from Rutgers University, underscoring a glaring disparity in representation that demands our attention and action.

Sarah Blahovec, co-founder of Disability Victory, astutely observes, “Disabled people are adaptable. We’re creative. We’re problem-solvers. And we’re resilient because every day we navigate a society that is not built for our needs.” These are not just qualities; they are a testament to the untapped potential that disabled individuals bring to leadership roles in every sphere of our society.

As we navigate through NDEAM, let’s champion for more than just hiring or electing disabled individuals. Let’s advocate for providing an upward path toward mobility in their jobs, giving them a chance to flourish, and arming them with the tools they need to be successful. Let’s ensure that the diverse pool of disability is represented in all decision-making rooms, from the board room, to the writers room, to elections. We need to be in the room where it happens.

In the spirit of fostering a society where every thread is valued, let’s weave a narrative where disability is not seen through a lens of limitation, but a spectrum of possibilities and diverse perspectives. Let’s be the catalysts for a future where equity is not just a metric but a lived reality.

What the WGA deal with Hollywood studios means to writers with disabilities

The Power of Representation

Disability-related workplace complaints were the second most-common discrimination complaint filed to the EEOC in 2020, and according to data published by the National Bureau of Economic Research, job candidates who disclose their disability are less likely to receive interest from employers.

Kristen Parisi, Morning Brew

Disability advocates talk a lot about representation. We talk about it so much we get tired of banging that particular drum. However, the underwhelming truth is, we remain underrepresented at work, in media, in advertising, and in society. As we enter the last week of Disability Pride, where the megaphone for us is a tad louder than normal, I want to talk about why that matters.

Representation is the foundation of inclusiveness. If we can’t be seen or acknowledged, if our perspectives are devalued or ignored, we are powerless to affect change. For this reason, representation in the C-Suite is particularly pivotal.

Yet, despite accounting for 20 percent of the global population, only four percent are openly out as disabled in the workplace according to the latest Disability Equity Index from Disability:IN. Not surprising given the added fears and anxieties that accompany workplace disclosure; concerns around equitable treatment, reasonable accommodations, changes in perceived abilities, and lower wages.

When it comes to media, a 2021 GLAAD report found only three and a half percent of characters in broadcast television shows during the 2020-2021 season had a disability. Of those, only 12 percent were portrayed by disabled actors according to a 2018 White Paper by the Ruderman Family Foundation.

The last example of underrepresentation, (which is being generous), is Pottery Barn, who last week unveiled their new Accessible Home furniture line—150 of their best-selling pieces redesigned with inclusivity in mind. Putting aside the company’s own admission that its high prices are likely to create a barrier to entry for their target market—one look at the models used in their campaign highlights one seemingly glaring omission—actual disabled people. It appears nobody within their marketing team could locate any of the roughly 1.5 billion disabled people worldwide to showcase their new furniture and opted instead for non-disabled models in hospital style wheelchairs. They want our money, just not our representation. Thankfully, Keely Cat-Wells, Tiffany A. Yu, MSc and the team at C Talent have put them on notice for future campaigns.

With these few examples, we remind you that the mere act of representation is not enough. Optics are not enough. Awareness is not enough. Being made aware is quite literally the first step, not the end goal. Awareness must be followed by inclusive action, without it, you’ve slipped into indifference.

Representation matters. Representation gives us a seat at the table. To all of the executives and C-Suite leaders, I ask you: What are you doing with it?

New PSA Urges More Disability Visibility and Representation in Hollywood

“A [2021] report on the television writing from the Think Tank for Inclusion and Equity found that 93% of disabled writers surveyed said they were the only disabled person on staff, and 97% of writing rooms had no upper-level disabled writers.”
-Marc Malkin Variety

Think about that for a moment. Disabled people are massively underrepresented in entertainment. And we are as diverse as we are numerous, accounting for 20% of the global population. Over the last few years disabled people have slowly begun to see themselves in newer series, movies, and television.

While representation has certainly improved, all too often it’s done as a trope, or an act of tokenism that actually causes more harm than good. That’s why diversity in writing rooms and elsewhere in Hollywood is as vital as inclusion, equity, and accessibility itself. Each of these pieces work together and can not stand alone. We need not just representation of disability, but we need it across the spectrum to account for the depth, breadth, and power of the disability experience.

Thank you to Inevitable Foundation for your important work.

New PSA Urges More Disability Visibility and Representation in Hollywood