Leading by Example: The Power of Allyship in Disability Inclusion

A line graph shows the steady employment rate for people with disabilities trending upward from 2010 and reaching record highs in 2023.

The landscape of disability employment is experiencing a transformative shift, marking an era of significant progress and inclusivity. Axios' Emily Peck reports a record 22.5% of people with disabilities were employed in 2023, reflecting a strong labor market and the empowering role of remote work. This transition is not merely an adjustment to a post-pandemic world; it represents a broader move toward genuine inclusivity, affirming that remote work is a crucial enabler for those traditionally marginalized in the employment sector.

Key Insights:

• The Bureau of Labor Statistics reports an increase in the disability rate among Americans to 12.5% in 2023, up from 11.7% in 2019.
• Labor force participation for disabled men and women has notably increased since 2019, highlighting a shift toward greater inclusion.
• Despite these gains, the unemployment rate for disabled workers was 7.2%  — about twice what it was for non-disabled workers, indicating persistent challenges in achieving full employment equality.

The expansion of the Disability Equality Index (DEI) to include more countries, as highlighted by HR Brew ™️’s Kristen Parisi, signals a growing global commitment to disability inclusion. Jill Houghton, president and CEO of Disability:IN, emphasizes the significance of senior leaders who "either openly identified as having a disability or being an ally for people with disabilities," illustrating that authentic leadership can catalyze profound organizational change.

Disability Employee Resource Groups, supported by the C-suite, are instrumental in fostering an inclusive work environment. These groups exemplify how investment in disability inclusion not only enhances corporate culture but also taps into a vast source of talent and market opportunity.

As we navigate the future, the journey toward disability inclusion will require a blend of innovative employment practices, committed leadership, and vibrant community engagement. By championing these changes, we can create workplaces where everyone, regardless of their abilities, can thrive.

Employment rate for Americans with disabilities reached record high in 2023

The Goldilocks Dilemma: Navigating Disability Representation in the Workplace

A photo of confident businesswoman sitting on wheelchair. Portrait of confident female professional is in board room. She is in smart casuals at creative office.

In the realm of business, the dialogue around disability inclusion often mirrors a well-rehearsed play: grand declarations of commitment to diversity, equity, and inclusion (DEI) are made, yet the curtain falls before any meaningful action takes place. This dissonance between words and actions reveals a profound misunderstanding of what authentic disability representation entails. It's not just about filling quotas or showcasing diversity for marketing purposes; it's about fostering an environment where every individual, regardless of their abilities, can thrive.

The concept of the "Goldilocks nature of disability" in the workplace is a testament to this misunderstanding. On one hand, individuals perceived as "too disabled" are often overlooked, based on the erroneous belief that they will require excessive accommodations or will not be as productive. On the other hand, those who excel, thanks to necessary accommodations, face skepticism and accusations of exploiting their disability for benefits like telework. This paradox highlights a glaring issue: many companies want disabled employees to be just disabled "enough" to benefit the company's image but not so much that understanding and meeting their needs becomes a priority.

Caroline Casey, in her Forbes article, underscores the imperative of authentic disability representation noting, "Piecemeal efforts like basic accessibility compliance or tokenistic representation fail to shift norms: what’s needed is a seismic culture change in how disability representation is understood and embedded across organizations from media and marketing to product design and accessible retail spaces." This sentiment is echoed in the recent initiative by Starbucks, as reported by Axios, where the opening of their accessible store in Union Market is not just a nod to accessibility but a step toward setting new standards in how businesses can and should integrate accessibility into their core operations.

However, as someone who has advocated for accessible entrances at my local Starbucks for nearly a decade, with success only coming in January 2024, I can't help but view this development with a mix of appreciation and irony.

True inclusion requires a shift in mindset—from viewing accommodations as a burden to seeing them as an investment in a diverse workforce reflecting the world we live in. It's about recognizing that every employee brings a unique set of skills and perspectives that, when harnessed, lead to innovation and growth.

As we navigate the complexities of disability inclusion, let us challenge ourselves and our organizations to move beyond performative actions. Let's commit to listening, learning, and adapting. Let's strive for a workplace where everyone is not just accommodated but truly included and valued.

Authentic Disability Representation Is A Business Imperative

Beyond the 1%: Amplifying Disabled Voices in Hollywood and Halls of Power

From left: Zayre Ferrer, Monica Cecilia Lucas and Gisselle Legere.

In the vibrant tapestry of our society, the disabled community weaves a narrative often left unexplored, yet profoundly impactful. As we celebrate National Disability Employment Awareness Month, let’s delve into the realms of representation, adaptability, and the stark disparities in political representation for disabled individuals.

“Roughly 20% of Americans live with a disability, yet less than 1% of Hollywood writers are disabled,” a stark revelation from the Inevitable Foundation. The recent Writers Guild of America West deal, promises to address specific issues impacting disabled writers in Hollywood most. Gisselle Legere, a Cuban American writer, heralded the WGA’s victory in setting a minimum number of writers who must be staffed on shows as the “biggest win,” illuminating a path toward more inclusive representation in the writers' rooms.

In the political arena, the narrative unfolds similarly, yet with its unique challenges. ChrisTiana ObeySumner MPA, MNPL, a multi-disabled Seattle City Council candidate, embodies the resilience and determination that disabled candidates bring to the political table. Yet, systemic barriers and ableist backlash often stymie their journey. A mere one in 10 elected officials have disabilities, according to a 2018 study from Rutgers University, underscoring a glaring disparity in representation that demands our attention and action.

Sarah Blahovec, co-founder of Disability Victory, astutely observes, “Disabled people are adaptable. We’re creative. We’re problem-solvers. And we’re resilient because every day we navigate a society that is not built for our needs.” These are not just qualities; they are a testament to the untapped potential that disabled individuals bring to leadership roles in every sphere of our society.

As we navigate through NDEAM, let’s champion for more than just hiring or electing disabled individuals. Let’s advocate for providing an upward path toward mobility in their jobs, giving them a chance to flourish, and arming them with the tools they need to be successful. Let’s ensure that the diverse pool of disability is represented in all decision-making rooms, from the board room, to the writers room, to elections. We need to be in the room where it happens.

In the spirit of fostering a society where every thread is valued, let’s weave a narrative where disability is not seen through a lens of limitation, but a spectrum of possibilities and diverse perspectives. Let’s be the catalysts for a future where equity is not just a metric but a lived reality.

What the WGA deal with Hollywood studios means to writers with disabilities

No Joke: Making Workplaces Disability-Friendly Can Be Fun!

Four people are socializing around a table. Three are out of focus in the background. A Wheelchair user with a gray beanie and glasses is in focus working on his laptop.

Today I thought I'd take a moment to talk about something that's as close to my heart as my love for Starbucks coffee: making workplaces more inclusive for employees with disabilities. As a disability advocate who's been navigating the world on wheels, and with Canine Companions® Pico, I've got a front-row seat to this rollercoaster ride.

First things first, understanding and acceptance. Charlotte Bramford, founder of Living With ME, told Verywell, "Don’t try to change them or fix them." I mean, we're not software updates, right? We don't need fixing. We just need understanding. So, let's put on our learning caps and get to work. Trust me, it'll lead to more smiles all around.

Education is the secret sauce here. Chelsea Bear, a digital creator and educator who lives with cerebral palsy, suggests reading books by disabled authors. It's like getting a backstage pass to the community without asking us to do the heavy lifting. Plus, you get to add 'well-read' to your list of virtues. Win-win!

Inclusion also means inviting us to the party. Even if we can't always go, we appreciate the invite. As Bramford puts it, "Support your disabled friend by including them in everything." And if we have to bail because our symptoms decide to throw their own party, be cool about it. We’d rather be there, trust us. Nobody plans on actively missing out on their own life.

Now, let's talk about workplace accommodations. According to a May survey by the U.S. Department of Labor's Job Accommodation Network (JAN), these aren't just fancy extras. They're like the secret ingredients in grandma's recipe that make everything work better, leading to benefits like improved company safety and increased productivity. Who knew, right?

Finally, advocating for representation. This means making sure we're in the picture, literally and figuratively. If your marketing campaign looks like it could use a diversity boost, here's your chance!

Remember, creating an inclusive environment isn't a sprint, it's a marathon. Or in my case, a really long wheelchair race. Starting now, commit to making workplaces more inclusive. Because at the end of the day, we're all just trying to get by in this crazy world. And remember, the best companies, like disabilities, are diverse. It's like a potluck dinner - a little bit of everything. And let's be honest, who doesn't love a good potluck?

Learn How Your Company Can Benefit From Providing Workplace Accommodations For Workers With Disabilities

Redefining Leadership: The Urgent Need for Disability Representation in the Boardroom

A silhouette of three people sitting in a boardroom.

We're almost halfway through Disability Pride Month. While companies proudly proclaim to be dedicated to diversity, equity, inclusion, and accessibility efforts, it's time to address an elephant in the room - the glaring absence of disability representation in the boardroom. Despite strides in workplace disability inclusion, one area remains stubbornly resistant to change - the highest echelons of corporate leadership.

According to Disability:IN's latest Disability Equality Index, only 7% of the 485 surveyed companies including Nike, Meta, Hilton, and Amazon reported having a director on their board who openly identifies as disabled. This same percentage represents the number of companies that even mention disability in corporate governance documentation concerning the nomination of new board directors.

Yikes.

This lack of representation is not just disappointing, it's detrimental. The boardroom is where strategic decisions are made, where the culture of an organization is shaped. Without representation at this level, how can we expect to foster an environment of true inclusivity?

I understand the stigma around disability and perceived ability to succeed in the workplace. But let me be clear - disability does not equate to inability. We, as disabled individuals, have unique perspectives and abilities that can greatly contribute to the success of any company.

Ted Kennedy, Jr., co-chair of the Disability Equality Index, said it best: “Boards govern more effectively when members bring diverse abilities and perspectives to the table, but disability continues to lag behind gender and ethnicity in board diversity considerations."

It's time for change. It's time for companies to seek out, appoint, and report on board-level disability representation. Not just to tick a box, but to truly embrace the value that diversity brings.

This Disability Pride Month, let's not just celebrate disability. Let's advocate for disability representation where it matters most - in the boardroom.

The Culture Shift: A Not-So-Secret Mission for Senior Leadership (and a Nudge for Disability Pride Month)

Senior Leadership Executives meet in an office setting.

We’re approaching Disability Pride Month, and I’ve got a mission for all the bigwigs out there. You know who you are - the ones with the corner offices and fancy titles. Now, don’t get all jittery; this mission doesn’t involve capes or secret handshakes (though that would be cool). It’s about leading the charge for disability inclusion. And no, I don’t mean sending out a company-wide email with confetti emojis. 🎉

Let’s get real. A survey by the Business Disability Forum showed that disabled employees are climbing mountains just to get workplace accommodations. Diane Lightfoot, the CEO, said something that made my ears perk up: “Accessibility and inclusion need to be embedded in all aspects of the organization and its culture.” Embedded, like chocolate chips in a cookie, but way more important.

So, senior leaders, here’s your not-so-secret mission:

1. Set Clear Inclusion Goals: I’m talking laser-focused. Not just for Disability Pride Month, but all year round. Because, guess what? Disabilities don’t take vacations.

2. Allocate Resources: Throw in the budget, the manpower, the coffee machines - whatever it takes! Make sure disability inclusion isn’t just a poster on the wall.

3. Lead by Example: No, you don’t need to wear a superhero cape (but again, cool). Just promote an inclusive culture. Attend disability awareness programs, maybe learn a secret handshake or two. When your employees ask for accommodations find a way to say 'Yes' instead of 'Prove it!'

4. Encourage Employee Engagement: Create platforms for employees to share experiences. And listen! You might learn something.

5. Monitor Progress: Keep an eye on how things are going. If it’s not working, change it. If it is, don’t fix what ain’t broke. Listen to disabled employees. Our experiences are valuable. We know what we need. If we're coming to you with a problem, we've been thinking through solutions ahead of time. Trust us.

6. Communicate the Value of Inclusion: Tell everyone how awesome it is to have a diverse workforce. And mean it. Did I mention listening to disabled employees? Our voices should be front and center, but true allyship involves non-disabled employees amplifying our message.

7. Partner with External Organizations: Phone a friend, call an expert, send a carrier pigeon. Get insights from disability advocacy groups.

8. Celebrate and Educate: Use Disability Pride Month as a launchpad. Celebrate achievements, educate the masses, and keep the momentum going.

Remember, Disability Pride Month is more than a calendar event; it’s a call to action. So, senior leaders, grab your metaphorical capes and let’s make every month Disability Pride Month through actions that speak louder than words (or emojis).

Share your thoughts, ideas, and secret handshakes for disability inclusion in the comments below.

Free Expertise? The True Cost of Devaluing Disability Advocacy

A colorful backdrop with a silver broadcaster’s microphone at the center.

In my life as a disability advocate, I've had the honor of standing up for countless causes, initiatives, and events. It's been a journey filled with moments that have inspired me, connections that have broadened my worldview, and the rewarding sense that I'm making a real difference. But there's a troubling trend that's been casting a shadow over these experiences: the expectation that my expertise, and that of many others in my field, should be offered without any compensation.

A fairly common exchange with a potential client:

Them: We’d love to have you speak at our event. 

Me: Fantastic. Here are my rates.

Them: Oh, you charge? We have no budget. 

This isn't just about money. It's about respect, value, and recognition. When organizations come to us for our expertise but hesitate at the idea of paying for it, they're sending a clear message: they don't believe our knowledge, our time, and our energy are worth investing in. This devalues our work, our experiences, and our contributions to the very causes these organizations claim to champion. You can't truly advocate for diversity, equity, inclusion, and access without compensating the thought leaders whose opinions and expertise you value.

Remember, you're reaching out to us because we're established leaders in our field. We don't need exposure as a fringe benefit for free labor.

This issue isn't just about me or about disability advocacy. It's a widespread problem affecting countless experts and professionals who are asked to give their time and knowledge for free. But as we approach Disability Pride Month, it's time to shine a spotlight on this issue in our field.

We, as disability advocates, bring a unique perspective to the table. We offer insights that can't be found in textbooks or online articles. We share personal experiences, hard-earned wisdom, and a deep understanding of disability issues. This expertise is valuable and should be treated as such.

It's time for a change. It's time for organizations to recognize the value of disability advocacy and to invest in it. It's time for us to stand up and say, "Our expertise is worth paying for."

As we approach Disability Pride Month, let's start a conversation about this. Let's challenge the status quo and advocate for the recognition and compensation we deserve. Let's do this together.

I invite you to share your thoughts, experiences, and ideas in the comments below. Let's use our collective voices to make a difference. And if this message resonates with you, I encourage you to share it with your network. Together, we can change the narrative.

The Importance of Disability Representation in Fashion

Three models wearing adaptive SKIMS clothing

"Taylor Lindsay-Noel says her “jaw dropped” after seeing the clip, which has been making its rounds on social media this week. “Disabled people are here to stay, whether you want them to be here or not,” she said in a TikTok directed to [Candace] Owens. “And we deserve to be seen in all forms of media, including lingerie and shapewear.”
—Natalie Michie, FASHION Magazine

In the wake of recent comments from political commentator Candace Owens deriding SKIMS for their recent ad campaign promoting adaptive clothing, I became instantly frustrated and annoyed before quickly turning my mind to curiosity. Whenever someone attacks diversity, equity, and inclusion efforts, one of my primary questions becomes, why?

Owens openly and proudly detesting these efforts as “ridiculous” is an indicator of just how far we have to go. People are fearful either of what they don’t understand, or what threatens them. To view DEI efforts as tiresome, patronizing, and being taken too far, as Owens does, is a tacit admission of privilege. The very idea that disability is something to be prioritized, placed front and center with pride and joy, to be celebrated and appreciated, must make someone as narrow-minded as Candace Owens fearful.

Ableism is not new. The disabled community confronts it in our daily lives whether it’s an inaccessible environment, questioning our capabilities in the workplace, or general derisive comments. What has increased in recent years is the brazenness by those in positions of power who publicly mock our right to exist as we are and not be ashamed for it. Candace Owens is a symptom of systemic ableism, she is not the cause.

Additionally, we have brands like Levi Strauss & Co., who late last week announced a partnership with Lalaland.ai, a digital fashion studio to bring AI-generated models to their modeling campaigns in an effort to increase diversity. While Amy Gershkoff Bolles, Ph.D. Bolles, global head of digital and emerging technology strategy at Levi Strauss & Co.noted that AI would ‘likely’ never fully replace human models, the caveat alone is concerning. AI-generated imagery aimed at the disability population certainly has the potential to increase revenue, but doing so artificially while claiming to champion DEI as a “top priority” is disingenuous. I’m reminded of the 2022 campaign by Pottery Barn last summer that proudly introduced its Accessible Home furniture line without employing any disabled models.

Despite what Candace Owens, or the marketing team at Levi Strauss & Co. has to say, disabled people aren’t going anywhere. As 20% of the global population, we deserve to see ourselves everywhere, and compensated accordingly. If that creates discomfort for you, interrogate why.

I’m thankful to the many disability advocates who continue to call out the harmful impact of ableism.

Disability and Disclosure in the. Workplace

Ryan Honick wearing a sky blue dress shirt, red tie, glasses, and headphones presents via Zoom to members of MGMI about reasonable accommodations and disability disclosure in the workplace on 10.22.22

A huge thank you to Susan Woolner, Lisa Gigliotti, and everyone at the Michigan Chapter of Myasthenia Gravis Foundation of America, Inc. for the opportunity to present this morning on navigating disability and reasonable accommodations in the workplace. An incredibly important conversation during #NDEAM and beyond.

Event Recap: Diversability Unplugged: Disability and Ableism in the Workplace

Event Recap: Diversability Unplugged: Disability and Ableism in the Workplace

Thank you to Tiffany A. Yu, MSc, Whitney Bailey, katherine lewis, Arielle Dance, PhD and the team at Diversability® for inviting me to speak on Disability and Ableism in the workplace for #ndeam. An evening of thought-provoking discussion and insights with powerhouse panelists Jacob Levy, Lusik Gasparyan, JD, RBT and Angela Fowler.

If you missed it, the recap and recording are now live!

Event Recap: Diversability Unplugged: Disability and Ableism in the Workplace

#workplace #hiring #disabilityAwareness #Disability #Ableism #disabilityInclusion #DEIA #DEI #ReasonableAccommodations