Adaptable, Flexible, Unstoppable: Eddie Ndopu's Message of Hope and Strength

Time Magazine Person of the Week Cover with Eddie Ndopu

In our journey through life, I find myself reflecting on the dual narratives that society often imposes on those with disabilities. On one hand, there's the story of overcoming, of achieving not because of our challenges but in spite of them. On the other, there's the reality we live every day: it's not our disabilities that hinder us, but society's ableist attitudes and approaches.

Eddie Ndopu, a United Nations and disability advocate living with spinal muscular atrophy encapsulates this sentiment perfectly. As he rightly points out in a recent interview with TIME, "disability has been the greatest offering and gift of my life." It's a sentiment I resonate with deeply. Our challenges make us adaptable, flexible, and give us a unique lens through which we view the world.

However, the societal narrative often deviates from this perspective. We're told there's a "standard" way of doing things, and any deviation is seen as "special." Requests for reasonable accommodations or basic access rights are often met with resistance, with claims of high costs or the unfairness of providing for one and not for all. This mindset fails to distinguish between equity and equality. While equality ensures everyone gets the same resources, equity ensures everyone gets the resources they need to succeed. And for those facing challenges, this often means working twice as hard for half the recognition.

The truth is, as Eddie Ndopu highlights, "the more barriers that I have been able to break down, the more barriers have awaited me on the other side." This resonates deeply with me. Despite our accomplishments, we're still faced with systemic inequalities and prejudices. We're often seen as "less than" or "incapable" due to our challenges. But as Eddie and countless others have shown, our challenges can be our greatest strengths.

In many ways, living with disabilities is like playing a never-ending game of whack-a-mole. As soon as one challenge is overcome, another pops up. But it's essential to keep the conversation going. The more we talk about our experiences, advocate for our rights, and normalize these discussions in all spheres of life, the closer we get to a world where challenges, accommodations, and access are seen as standard, not special.

As we continue to advocate, let's remember that our challenges don't define us – they refine us. They make us stronger, more resilient, and more empathetic. And as we push for a more inclusive world, let's celebrate not just our achievements but the unique perspectives and strengths that come with our experiences.

Eddie Ndopu on How Disability Helped Him Rethink Excellence

Barbie Movie: A Step Forward or a Missed Opportunity for Disability Representation?

Ryan, Rachael, and Pico pose in front of the poster for Barbie Movie.

This past weekend, my girlfriend and I joined the throngs of Mattel, Inc. Barbie enthusiasts to watch the much-anticipated Barbie movie. As a disability advocate and a fan who may have unapologetically bought "KENough" merch, I was particularly interested in the representation of Wheelchair Barbie, a character that has been a beacon of hope for many young individuals who use wheelchairs.

The movie was entertaining, and the diversity representation was commendable. However, I couldn't help but notice that Wheelchair Barbie, despite her presence in the opening dance scenes, had no dialogue throughout the movie. This was a stark reminder of the reality that, as Madison Lawson writes in her Teen Vogue op-ed, "People with disabilities are rarely featured as the ideal beauty standard, and are often used as objects of inspiration to make non-disabled people feel better about themselves."

The lack of dialogue for Wheelchair Barbie speaks volumes about the broader perception of disability in our culture. It's as if our voices are not deemed important enough to be heard, even in a movie that prides itself on diversity and inclusion.

The struggles faced by Senator Tammy Duckworth, a disability advocate and wheelchair user, further underscore the challenges we face. As reported by POLITICO, Senator Duckworth was unable to watch the Barbie movie due to a broken elevator at the theater. This incident highlights the persistent accessibility issues that prevent full participation in society for individuals with disabilities.

On a more positive note, a resurfaced video of Margot Robbie, the star of the Barbie movie, communicating with a deaf fan at the movie premiere in Amsterdam, has been making rounds on the internet. While many outlets have praised Robbie's actions, I believe that such acts of inclusion should be normalized rather than sensationalized. Inclusion is not a favor or an act of charity; it is a basic human right.

As we wind down Disability Pride Month, let's remember that representation matters, but it's not enough. We need to ensure that our voices are heard, our experiences are acknowledged, and our rights are respected. Let's strive for a world where inclusion is the norm, not the exception.

The Barbie movie, with its appeal and lessons, transcends the gender spectrum. It's a reminder that stories of inclusion and diversity are not just for girls or boys, but for everyone.

Wheelchair Barbie Is a Lesson in the Power of Showing Up Where People Don't Think You Belong