A brick wall with a round button labeled "PUSH TO OPEN" featuring a wheelchair accessibility symbol.
All month long, I've been reflecting a lot on how disability is so often misunderstood. The Americans with Disabilities Act was a groundbreaking achievement for disability rights. But let's be real—it should be seen as the floor, not the ceiling, for what we aim to achieve.
A major misconception about disability is viewing it as a monolithic experience. It's not. Disability is vast, varied, and beautiful. Just like NPR readers pointed out, “Disabilities aren't one size fits all” and “not all disabilities are visible or immediately recognizable.” This diversity within our community needs more acknowledgment and understanding. We must break free from narrow definitions of what’s considered a “legitimate” disability. The ADA definition of disability is broad, in large part due to the recognition that disability affects everyone differently.
The ADA has indeed been instrumental in advancing the rights of people with disabilities. It opened doors and provided legal protection against discrimination. Yet, as Andrew Pulrang emphasizes, the ADA is often seen as “toothless” because of inconsistent enforcement and the persistent barriers—both physical and societal—that we encounter daily. Accessibility should be a basic right, not an inconvenience that gets ignored when it’s costly or challenging.
People’s ideas of what disability looks like are often so limited. They have these fixed notions that lead to gatekeeping and judgment. I remember when I got matched with Canine Companions® Pico, in 2014. Moving through the world with him opened my eyes to many nuances of disability access. Even though I’ve been disabled my whole life, being a new service dog handler was an entirely new experience. Pico and I faced challenges, but we also created positive change by challenging perceptions of what we could accomplish as a team.
True inclusion begins with empathy and a willingness to understand the varied experiences of those of us with disabilities. It means challenging preconceived notions and really listening to the voices within our community. As one NPR reader aptly put it, “Disability is not a fate worse than death. You can adapt, and you would if you suddenly became disabled.”
“Our disabilities are not flaws to be fixed, but integral parts of our identities that shape our unique perspectives and strengths,” Kim Chua told NPR. “We’re not defined solely by our disabilities. We’re whole, complex individuals with dreams, talents, and contributions to make.” By fostering a culture of empathy and understanding, we can work toward a society that truly values and includes everyone. The ADA was just the starting point, but our journey toward full equity and inclusion is ongoing. Let’s keep moving forward together.
As we close out Disability Pride, remember to lead with empathy and curiosity.
What NPR readers want you to know about living with a disability-readers-stories