The Forgotten in the Flames: Why Emergency Planning Must Include Disabled People

A scene of intense wildfires, with palm trees and vegetation engulfed in flames, embers scattering through the air, and a vibrant orange hue dominating the environment.

Reading the recent story from Sonja Sharp at Los Angeles Times about Anthony Mitchell Sr. and his son Justin—a father and son who both had disabilities and died because of inadequate evacuation planning during the devastating LA wildfires—has left me angry and heartbroken. Their deaths were preventable, and yet they were left to wait, pray, and perish. This tragic event reflects systemic failures that disabled people, like me, fear every day.

I can’t ignore how often disabled people are overlooked in emergency planning.

Growing up, I was never truly part of evacuation plans. After 9/11, I remember my math teacher pointing to a football player and saying, “Ryan, that’s your escape plan.” That moment encapsulated the lack of planning, forethought, and value placed on the lives of disabled individuals. Now, as an adult living in a 25-story high-rise in D.C., those fears haven’t gone away. During fire drills or alarms, the elevator shuts down, the hallway doors automatically lock, and I’m left wondering: “Will anyone come?” I’m on supposed watch lists, but those plans are never practiced. The truth is, I don’t have faith that help will come when it matters most.

Anthony Mitchell Sr., an amputee who used a wheelchair, and Justin Mitchell, who had cerebral palsy, couldn’t escape on their own. Firefighters stopped family members from entering the evacuation zone to save them. As the flames closed in, they huddled together, waiting for a rescue that never came.

Officials have known for years that disabled individuals are disproportionately impacted by disasters. A 2019 state audit highlighted how emergency management agencies were woefully unprepared for this threat, despite California being home to 4 million disabled residents, including nearly a quarter-million in Los Angeles​

We can and must do better. Emergency response plans need to be inclusive, regularly practiced, and accessible to everyone. This means involving disabled individuals in planning processes, investing in assistive technology, and ensuring first responders are trained to address the needs of disabled people during disasters.

We’re one-fourth of the global population. Our lives are just as valuable, and our voices need to be heard. Let’s stop apologizing after the fact and start making proactive changes now. The cost of inaction is far too great.

The FTC’s $1M Wake-Up Call to accessiBe: Why Accessibility Overlays Are Failing Us

A colorful and abstract digital artwork depicting a judge's gavel. The gavel is stylized with splashes of vibrant paint in shades of yellow, green, blue, purple, orange, and black, creating a dynamic, graffiti-like effect. The background is a chaotic blend of splattered colors, giving the image an energetic and bold appearance

As someone who uses assistive technology on a daily basis, I understand the value of true accessibility. Overlays purport to perform magic, but instead simply render many websites unusable, particularly for people with screen readers or those using other assistive devices. That’s why the recent $1 million Federal Trade Commission fine against accessiBe is not just a headline — it’s a landmark moment for digital accessibility.

The Federal Trade Commission revealed accessiBe’s deceptive practices, which included paying reviewers to talk about its products. Samuel A.A. Levine, the director of the F.T.C.’s Bureau of Consumer Protection, said in the statement, “Companies seeking assistance to make their websites [accessibility] compliant need to be able to trust that products do what they promise.” When they fail to do so, everyone loses — and so does the disability community.

Advocacy groups have been ringing the alarm for years. National Federation of the Blind condemned accessiBe’s business practices as “disrespectful and misleading” and more than 400 accessibility advocates signed an open letter imploring businesses to abandon automated overlays. And the risks for companies? Huge. In 2021, over 400 organizations utilizing accessibility widgets were sued over non-compliance with accessibility standards.

This isn’t just about the failings of one company; we need to rethink our whole approach to accessibility in the digital age. You might think overlays are the solution, but the reality is, there are no shortcuts to inclusion. Real accessibility is the result of audits, user testing with people who have disabilities and compliance with WCAG standards. It’s not just about keeping away from lawsuits — it’s about building an internet that benefits everyone.

The FTC’s action should be a wake-up call. Convenience should not come at the expense of inclusion, transparency, and accountability — so it’s time for businesses to prioritize it.

FTC orders AI accessibility startup accessiBe to pay $1M for misleading advertising

Why Lying About Disability Hurts Everyone

Silhouetted wheelchair user navigating through a bustling airport terminal during sunrise or sunset, with warm golden light streaming in from large windows ahead. The reflection of the light creates a glowing effect on the polished floor. Other travelers with luggage are blurred in the background, adding a sense of motion and activity to the scene.

Thanksgiving this year marked a bittersweet milestone for me: my first flight since the passing of my service dog, Canine Companions® Pico. Navigating air travel without his steadying presence was an emotional adjustment, but it also brought a new set of challenges to the forefront—ones I hadn’t anticipated as a wheelchair user.

Picture this: It’s the early hours of the morning, and I’m at DCA, waiting to board my flight to Seattle. Between navigating Transportation Security Administration (TSA) Pre-check, managing my luggage, and coordinating the safe onboarding of my wheelchair, I was already juggling more than most travelers might consider. And then came the questions.

The heightened interest in the mechanics of my Alber GmbH power-assist wheels meant fielding inquiries from airline staff who were understandably curious about the technology I rely on for mobility. Half-asleep and longing for coffee, I found myself explaining the specs of my chair like I was pitching a new gadget on Shark Tank ABC.

The lesson I learned? Preparation is survival. Much like I once traveled with paperwork to verify Pico’s working status, I now carry a one-page cheat sheet detailing everything about my wheelchair frame and wheels. It’s a necessity for safety reasons, and because of the pervasive scrutiny many disabled travelers face—scrutiny amplified by dishonest actions like those described in a recent viral story.

A passenger on a United Airlines flight tried to exploit early boarding by claiming he had a disability due to recent knee surgery. However, his actions unraveled when he requested a seat in the exit row, where passengers must confirm their ability to assist in emergencies—something Federal Aviation Administration regulations prohibit for people with certain disabilities. Faced with the choice of admitting he lied or forfeiting the coveted exit row seat, he indignantly claimed he was suddenly "fine" to sit there after all.

When individuals fake disabilities, it undermines the trust needed for systems like pre-boarding to work. Those of us with legitimate needs find ourselves subjected to greater scrutiny. Additionally, exploiting accommodations reinforces the false idea that they’re perks instead of rights—conveniences to be gamed rather than tools for equity. This attitude chips away at the dignity of those who rely on these systems. Disability is not a monolith, but one thing unites us: the barriers we face are real. Every "clever hack" or deception makes the rest of us pay a higher price, emotionally, physically, and logistically.

We, as a society, must do better. We must normalize empathy over suspicion and remember that accessibility isn’t just a checkbox on a corporate DEIA plan—it’s a commitment to dignity, inclusion, and equity for all.

Planning to lie about a disability to get early boarding? Read this

Turning Frustration Into Fuel: Disability Advocacy in 2025

Portrait of Alice Wong, a disability activist and MacArthur genius, sitting outdoors surrounded by lush green foliage. She is wearing a colorful outfit, and a ventilator tube is visible at her neck. Her expression is calm and contemplative, reflecting her resilience and strength.

The world feels heavy, doesn’t it? Some days it’s hard to shake the thought that everything is unraveling. Advocacy, especially disability advocacy, can feel like shouting into the void. The uphill battle seems steeper than ever, and yet—we press on. Because we must.

Alice Wong, a luminary in disability activism, put it bluntly telling The Guardian: “Yes, life is a complete dumpster fire, but I am reminded that I am not alone.” Her words hit home. Advocacy isn’t a solitary act. It’s a collective one, fueled by the connections we forge and the communities we build. It’s messy. It’s relentless. But it’s also transformative.

Anger? It’s a battery charger. Wong speaks to this beautifully: frustration doesn’t have to drain us—it can energize us. When progress feels stagnant or outright regressive, channeling that fury into action becomes a radical act of hope. Advocacy, after all, isn’t just about surviving the chaos; it’s about rewriting the rules that made survival so hard in the first place.

And yet, advocacy isn’t solely struggle. That’s the trap, isn’t it? To define our lives by hardship alone. Wong challenges this, insisting that the disabled experience is nuanced—full of abundance, love, and joy. “One principle of disability justice,” she reminds us, “is recognizing the inherent value and wholeness of people regardless of their ability to produce.”

Pause for a moment. Let that sink in. A world that values you—not for what you can give, but simply because you exist. It’s a radical notion in a society obsessed with output and efficiency. But that’s the heart of disability justice. It’s about dismantling systems that devalue lives and building frameworks that affirm them.

Of course, it’s not easy. Advocacy is never linear. There are setbacks and moments when the weight feels unbearable. But even then, there’s power in reframing the narrative. Wong’s love of science fiction offers a powerful metaphor: infinite possibilities. Speculative fiction invites us to dream boldly, to imagine futures where inclusion isn’t aspirational—it’s foundational.

So, here we are. 2025. The world may still feel bleak, but our voices—your voice—matter. They ripple outward, shifting conversations, policies, and perceptions. Advocacy isn’t a sprint; it’s a marathon. And while the finish line feels far off, every step matters.

Take your frustration. Take your anger. Take your hope. Turn them into fuel. Together, we’re building something extraordinary: a future where our community doesn’t just survive, but thrives.

MacArthur genius Alice Wong on resistance in the new year: ‘Life is a dumpster fire, but I’m not alone’

Remote Work Isn’t a Perk—It’s a Lifeline for Disabled Federal Employees

People walking past the Department of the Treasury building, a historic structure with large columns and engraved signage, on a chilly day with some leaves scattered on the ground.

For more than a decade as a federal employee, I’ve been proud to serve the public. I’ve earned awards, glowing reviews, and built a career I love. But here’s the truth: my success wouldn’t have been possible without telework. As a disabled professional managing multiple disabilities, remote work is more than a convenience—it’s a lifeline. It enables me to thrive in an environment that meets my needs and eliminates barriers that might otherwise exclude me. Now, all of that progress is at risk.

The Wall Street Journal's John McCormick and Te-Ping Chen report on the newly envisioned Department of Government Efficiency effort to mandate full-time in-office work is alarming. Elon Musk and Vivek Ramaswamy, leading this charge, have made it clear that they expect resignations, with Ramaswamy predicting as many as 25% of federal workers could leave. To them, this might sound like trimming bureaucracy. In practice, this is a targeted assault on equity and inclusion.

Telework gave disabled employees the chance to participate in record numbers, eliminating barriers like long commutes and inaccessible environments. Meg O'Connell, PHR of Global Disability Inclusion, LLC explained it best to HR Brew ™️'s Kristen Parisi: “People with disabilities have what they need in their homes. They don’t have to ask for accommodation [because] they’ve already built out their space.” Why dismantle a system that works?

While many argue in-person work fosters collaboration, the private sector is proving otherwise. Glassdoor’s CEO Christian Sutherland-Wong told Fortune, “The biggest benefit we’ve seen…is being able to tap into talent all around the U.S. and the globe.” If companies like Glassdoor see remote work as a future-driven solution, why is the government pushing outdated practices?

This isn’t just about where we work; it’s about who gets to work. Forcing disabled employees back into offices undermines principles of diversity, equity, inclusion, and access. Policies like DOGE’s mandate send a clear message: “We don’t trust you or value your contributions unless we see you at a desk.” As Dannie Lynn Fountain, DBA, EA, SPHR, CDR of Google said, these practices are “still disability discrimination.”

The pandemic proved remote work’s transformative potential. It shattered barriers for disabled workers and redefined productivity. Now, that progress is being reversed. The stakes couldn’t be higher—not just for me but for all of us. Are we building workplaces of the future or clinging to systems that exclude?

Remote work empowered me to thrive, but it also redefined what’s possible for our workforce. Let’s not let fear of change erase that progress. Inclusion is more than a checkbox; it’s a commitment to creating workplaces where everyone can succeed.

Musk, Ramaswamy Want Federal Workers in the Office Full Time. There’s a Hitch.

Project 2025 and America’s Choice: What Trump’s Reelection Means for Disability Rights and DEI

Black background with white text reading 'What's at Stake for Civil Rights: Project 2025,' framed by a gradient border transitioning from purple to blue to pink.

For many in the disability community, the outcome of this election is a profound blow. It's a stark reminder that this is not an anomaly; it's a deliberate choice by the electorate. As disability advocates, we must confront this reality, grieve its implications, and prepare for the arduous journey ahead.

Diversity, Equity, and Inclusion efforts are essential for creating spaces where all people, including disabled individuals, can thrive. Yet, with Project 2025’s clear intent to politicize the federal workforce, these efforts face a direct threat. The plan to replace nonpartisan civil servants with political loyalists doesn’t just jeopardize the integrity of government agencies; it also poses a serious risk to any DEI initiatives within the federal government. When leadership is handpicked to fit a rigid ideological mold, DEI initiatives—particularly those that protect marginalized groups—become targets for dismantling.

For disabled federal employees like myself, this change isn’t abstract. It could mean the erosion of inclusive hiring practices, the rollback of workplace accommodations, and a shift toward a culture that prioritizes conformity over diversity. By undercutting DEI, the federal government risks creating a hostile environment for all who rely on its protections, effectively shutting the door on years of progress in fostering an equitable workplace.

Moreover, Project 2025 aims to politicize the federal workforce by replacing nonpartisan civil servants with loyalists. This shift could transform agencies like the U.S. Department of Justice from protectors of civil rights into enforcers of a singular ideology, jeopardizing the rights of marginalized communities.

In 2016, we told ourselves, "This isn't who we are." Today, we must face the hard truth: This is who we are. Our society has twice chosen a path that marginalizes, excludes, and actively silences people like us. As Scaachi Koul wrote for Slate Magazine, "This is a country where half the population is content in its hatred of women, of queer people, of brown and Black people, of anyone who comes to the United States from a poorer country."

Acknowledging the pain doesn't mean we give up. We have work to do, even if it's uphill, exhausting, and heartbreaking. But we have to begin by mourning what we've lost—the hope for a more inclusive future, the belief that our voices mattered, and that progress was possible. We may be in the crosshairs, but we are not powerless. We are still here, advocating, fighting, and demanding that our nation's policies reflect everyone's needs, not just those who conform to a narrow idea of "American."

So let's grieve today, gather strength, and prepare for what comes next. Tomorrow, we continue the work, not because it's easy, but because it's necessary.

Rest Easy, Pico

A montage grid of photos featuring Ryan and Pico

Many of you know me for my advocacy work around disability rights, accessibility, and inclusion. Those who have followed my journey also know what an integral part of that advocacy my service dog, Canine Companions® Pico, has been. He was not just my companion but a key part of my mission to break down barriers and create a more inclusive world.

Last night, I had to say goodbye to my best friend, my partner, and my loyal service dog, Pico. Nearly 13 years of unwavering loyalty, love, and trust — Pico was more than a service dog. He made me a better human, a better advocate, and someone who could navigate the challenges of the world with confidence.

Waking up to the quiet today hits hard. It’s a silence I wasn’t ready for. Pico not only helped me navigate the world physically, but he also helped me grow as a person and reminded me every day of the power of loyalty, patience, and love.

Rest easy, Pico. You’ve earned your peace. Thank you for being the most amazing boy. I’ll carry your lessons and your love with me always.

The Floor, Not the Ceiling: Continuing the ADA's Legacy

A brick wall with a round button labeled "PUSH TO OPEN" featuring a wheelchair accessibility symbol.

All month long, I've been reflecting a lot on how disability is so often misunderstood. The Americans with Disabilities Act was a groundbreaking achievement for disability rights. But let's be real—it should be seen as the floor, not the ceiling, for what we aim to achieve.

A major misconception about disability is viewing it as a monolithic experience. It's not. Disability is vast, varied, and beautiful. Just like NPR readers pointed out, “Disabilities aren't one size fits all” and “not all disabilities are visible or immediately recognizable.” This diversity within our community needs more acknowledgment and understanding. We must break free from narrow definitions of what’s considered a “legitimate” disability. The ADA definition of disability is broad, in large part due to the recognition that disability affects everyone differently.

The ADA has indeed been instrumental in advancing the rights of people with disabilities. It opened doors and provided legal protection against discrimination. Yet, as Andrew Pulrang emphasizes, the ADA is often seen as “toothless” because of inconsistent enforcement and the persistent barriers—both physical and societal—that we encounter daily. Accessibility should be a basic right, not an inconvenience that gets ignored when it’s costly or challenging.

People’s ideas of what disability looks like are often so limited. They have these fixed notions that lead to gatekeeping and judgment. I remember when I got matched with Canine Companions® Pico, in 2014. Moving through the world with him opened my eyes to many nuances of disability access. Even though I’ve been disabled my whole life, being a new service dog handler was an entirely new experience. Pico and I faced challenges, but we also created positive change by challenging perceptions of what we could accomplish as a team.

True inclusion begins with empathy and a willingness to understand the varied experiences of those of us with disabilities. It means challenging preconceived notions and really listening to the voices within our community. As one NPR reader aptly put it, “Disability is not a fate worse than death. You can adapt, and you would if you suddenly became disabled.”

“Our disabilities are not flaws to be fixed, but integral parts of our identities that shape our unique perspectives and strengths,” Kim Chua told NPR. “We’re not defined solely by our disabilities. We’re whole, complex individuals with dreams, talents, and contributions to make.” By fostering a culture of empathy and understanding, we can work toward a society that truly values and includes everyone. The ADA was just the starting point, but our journey toward full equity and inclusion is ongoing. Let’s keep moving forward together.

As we close out Disability Pride, remember to lead with empathy and curiosity.

What NPR readers want you to know about living with a disability-readers-stories

Disability Pride: Beyond the Celebratory Facade

A wheelchair user wearing a superhero cape navigates a city street filled with obstacles like stairs and debris. The cityscape includes tall buildings, narrow doorways, and inaccessible paths.

Disability is like any other complex relationship, filled with highs and lows. Some days are easy, some days are challenging, and some days we triumph over societal barriers—lack of access, accommodations, empathy, or compassion. And then there are days when we’re simply too exhausted to fight and need time to recoup. We don’t owe anyone 24/7 optimism, even during Disability Pride Month, but that doesn’t mean our lives hold any less value.

My entrepreneurial father Craig Honick once told me, “Advocate so well you put yourself out of business.” It’s a lofty goal I still think about often. Ideally, we’d live in a world where disability awareness is ingrained in our societal fabric. But we’re not there yet. So, we fight. The progress we’ve made excites us, but the fight is exhausting, and we feel it deeply. As the calendar flips to a new month, we’ll still be here, fighting, and we’ll still be disabled.

Throughout this month, I and other advocates have spotlighted daily examples of our community’s struggle for basic equity and inclusion. But awareness without action is empty. Now that you’re aware of the struggles, what are you going to do? Too often, our voices are drowned out by our non-disabled peers. So here’s our ask: pass the mic when you can, amplify our stories, and when you see something wrong, speak up. We need your allyship not just in July, but all year long.

Emily Ladau put it best on the latest episode of The Accessible Stall podcast: “Sometimes I just don’t feel like practicing [Disability Pride]. I’m exhausted.” This sentiment resonates deeply. Pride in our disability is indeed an ongoing practice, a muscle that needs stretching. Awareness is step one. What will you do to be a better ally once the spotlight dims?

Here are some actionable steps to support disability advocacy and inclusion:

• Educate Yourself and Others: Learn about the issues facing the disability community and share this knowledge with those around you.

• Amplify Disabled Voices: Use your platform to highlight the stories and experiences of disabled individuals. Folks like Kristen Parisi, Tiffany A. Yu, MSc, Alexa Heinrich, Marisa Hamamoto, Margaux Joffe, CPACC, 🦻 Meryl Evans, CPACC (deaf), Keely Cat-Wells, Julie Harris, Jamie Shields, Catarina Rivera, MSEd, MPH, CPACC, Donna Cruz Jones, Sheri Byrne-Haber (disabled) and so many others who do amazing work.

• Advocate for Accessibility: Push for accessible practices in your workplace, community, and beyond. Accessibility benefits everyone.

• Offer Genuine Support: Ask disabled people what support looks like for them and follow through.

• Speak Up: When you see discrimination or inaccessibility, don’t stay silent. Use your voice to advocate for change.

Let’s move beyond just awareness. Let’s take action together to create a more inclusive and equitable world for all. Your allyship matters every day.

Piecing It Together: A Story of Self-Discovery and Disability Awareness

A festive indoor celebration scene for the 34th anniversary of the Americans with Disabilities Act. The centerpiece is a large two-tiered cake decorated with the Disability Parking Symbol in blue. The top of the cake features lit candles and large number "34" candles. The cake is inscribed with the message "Happy 34th Anniversary of the Americans with Disabilities Act." The background is adorned with colorful balloons and streamers, creating a joyful and vibrant party atmosphere.

As we celebrate the 34th anniversary of the Americans with Disabilities Act, I want to share a story close to my heart. It's about my best friend, who, in her early thirties, has only recently come to realize she's been disabled for much of her life. Her journey of self-discovery is a testament to the complex and unique paths we each take to understand our own disabilities.

Growing up, she was that quirky, clumsy teenager who fell down all the time. Friends joked that someone needed to be nearby to catch her, and frequent ER visits were chalked up to her being "accident prone." High heels? A fashion no-go because of her wobbly ankles. Gym class? A nightmare, especially when a heart condition—misdiagnosed for years—made sustained exercise impossible.

Her life was a series of "quirks" that never quite added up. Hypermobile joints, ADHD symptoms, and a heart that often felt like it was drowning were all dismissed as part of her "unique charm." It wasn't until her mid-twenties that the pieces started falling into place with proper diagnoses: hypermobility, inappropriate sinus tachycardia, and an ongoing assessment for ADHD.

Reflecting on her journey, she realized how internalized ableism and a lack of confidence about what "counts" as a disability had prevented her from embracing her disabled identity. She had tried to fit into the mold of the manic pixie dream girl, cultivating her issues as endearing quirks rather than recognizing them as signs of her disabilities.

Dating, too, was fraught with challenges. She constantly worried about keeping up with potential partners who enjoyed activities like hiking and running—activities her body couldn't always handle. This anxiety stemmed from societal perceptions of disability hierarchies and the pressure to be "normal."

Her story is a powerful reminder that disability journeys can begin at any time and are often unexpected. Understanding disability through formal or informal diagnosis provides a unique lens and vocabulary to better understand oneself. It's a journey of discovery, relief, and pride.

On this anniversary of the ADA, let's celebrate not only those who fought for our rights but also those just beginning to understand and embrace their disabilities. Their stories are vital in the ongoing fight for diversity, equity, inclusion, and access.