Rest Easy, Pico

A montage grid of photos featuring Ryan and Pico

Many of you know me for my advocacy work around disability rights, accessibility, and inclusion. Those who have followed my journey also know what an integral part of that advocacy my service dog, Canine Companions® Pico, has been. He was not just my companion but a key part of my mission to break down barriers and create a more inclusive world.

Last night, I had to say goodbye to my best friend, my partner, and my loyal service dog, Pico. Nearly 13 years of unwavering loyalty, love, and trust — Pico was more than a service dog. He made me a better human, a better advocate, and someone who could navigate the challenges of the world with confidence.

Waking up to the quiet today hits hard. It’s a silence I wasn’t ready for. Pico not only helped me navigate the world physically, but he also helped me grow as a person and reminded me every day of the power of loyalty, patience, and love.

Rest easy, Pico. You’ve earned your peace. Thank you for being the most amazing boy. I’ll carry your lessons and your love with me always.

The Floor, Not the Ceiling: Continuing the ADA's Legacy

A brick wall with a round button labeled "PUSH TO OPEN" featuring a wheelchair accessibility symbol.

All month long, I've been reflecting a lot on how disability is so often misunderstood. The Americans with Disabilities Act was a groundbreaking achievement for disability rights. But let's be real—it should be seen as the floor, not the ceiling, for what we aim to achieve.

A major misconception about disability is viewing it as a monolithic experience. It's not. Disability is vast, varied, and beautiful. Just like NPR readers pointed out, “Disabilities aren't one size fits all” and “not all disabilities are visible or immediately recognizable.” This diversity within our community needs more acknowledgment and understanding. We must break free from narrow definitions of what’s considered a “legitimate” disability. The ADA definition of disability is broad, in large part due to the recognition that disability affects everyone differently.

The ADA has indeed been instrumental in advancing the rights of people with disabilities. It opened doors and provided legal protection against discrimination. Yet, as Andrew Pulrang emphasizes, the ADA is often seen as “toothless” because of inconsistent enforcement and the persistent barriers—both physical and societal—that we encounter daily. Accessibility should be a basic right, not an inconvenience that gets ignored when it’s costly or challenging.

People’s ideas of what disability looks like are often so limited. They have these fixed notions that lead to gatekeeping and judgment. I remember when I got matched with Canine Companions® Pico, in 2014. Moving through the world with him opened my eyes to many nuances of disability access. Even though I’ve been disabled my whole life, being a new service dog handler was an entirely new experience. Pico and I faced challenges, but we also created positive change by challenging perceptions of what we could accomplish as a team.

True inclusion begins with empathy and a willingness to understand the varied experiences of those of us with disabilities. It means challenging preconceived notions and really listening to the voices within our community. As one NPR reader aptly put it, “Disability is not a fate worse than death. You can adapt, and you would if you suddenly became disabled.”

“Our disabilities are not flaws to be fixed, but integral parts of our identities that shape our unique perspectives and strengths,” Kim Chua told NPR. “We’re not defined solely by our disabilities. We’re whole, complex individuals with dreams, talents, and contributions to make.” By fostering a culture of empathy and understanding, we can work toward a society that truly values and includes everyone. The ADA was just the starting point, but our journey toward full equity and inclusion is ongoing. Let’s keep moving forward together.

As we close out Disability Pride, remember to lead with empathy and curiosity.

What NPR readers want you to know about living with a disability-readers-stories

You Don’t Look Disabled: The Harmful Effects of Gatekeeping

“Keep Out” Sign in red lettering against a brick wall.

Living with cerebral palsy, I've encountered many forms of gatekeeping that undermine my lived experience. Despite decades of progress and the landmark Americans with Disabilities Act turning 34 this year, our community continues to face skepticism and discrimination, often because we don’t fit society's narrow view of what disability should look like.

Paul Castle, a blind artist and illustrator, encapsulates a critical point when he says, "Blindness is a spectrum." Castle and his guide dog, Mr. Maple, were recently denied entry to a Seattle restaurant because an employee didn't believe Mr. Maple was a real service animal. The employee's reasoning? "You don't look blind," he told Castle, per CBS News. This statement underscores a broader issue: the public's limited understanding of disabilities, which often leads to harmful gatekeeping.

Disability manifests in countless ways, both visible and invisible. As someone who uses a wheelchair and a service dog, along with chronic pain, I've seen firsthand how quickly people are to judge based on appearances. The reality is, disabilities are as diverse as the people who live with them. They can vary not just from person to person but even within the same individual over time.

The Daily Dot reports, Katie, a TikTok user with a service dog, shared a harrowing experience at a JCPenney store. During a medical episode, a fellow shopper harassed her, questioning why she needed a service dog and even suggesting she was "in the way." Katie’s service dog was assisting her, but the woman insisted, "You don't look like you need a service dog." This incident again highlights the everyday struggles we face, constantly defending our needs against ignorance and prejudice.

Such encounters are not isolated. They reflect a systemic issue where ableism and medical gatekeeping prevent us from accessing the rights and accommodations to which we are legally entitled. This attitude perpetuates discrimination and hinders true inclusion. We need to shift the narrative from suspicion and doubt to understanding and acceptance.

To combat this, we need stronger laws protecting the rights of people with disabilities and better public education about the spectrum of disabilities. Educating the public about the ADA and the legal rights of service dog handlers is essential. We must urge legislators to enforce existing laws more strictly and to consider new measures that protect us from discrimination and harassment.

As I reflect on these stories, I am reminded of the resilience of our community and the importance of continuing the fight for equity and inclusion. We must break down these barriers and educate others about the true nature of disabilities. Disclosing our disability is not for style points or sympathy. We share so that you'll understand, and most importantly, believe us.

Blind artist who was told "you don't look blind" has a mission to educate: "All disabilities are a spectrum"

Empowerment on Four Legs: Celebrating National Service Dog Month

Ryan, next to service dog Pico, poses with D.C. Councilwoman Brooke Pinto, Canine Companions puppy raiser, Jaime Werner and her service dog in training, Boston following the recognition of National Service Dog Month by the D.C. City Council

Yesterday, I was honored to witness the formal recognition of National Service Dog Month by the Council of the District of Columbia, a testament to the incredible work of organizations like Canine Companions®.

Since its inception in 1975, they have placed 7,454 graduate teams. Just this year, 413 working dog teams have been placed, and there are currently 2,706 active graduate teams nationwide. Behind these numbers are countless stories of individuals finding newfound independence and confidence, thanks to their service dogs.

But these achievements aren't just the result of the organization's efforts alone. A vast network of 4,700 active volunteers nationwide, including 1,292 volunteer puppy raisers and 138 volunteer breeder caretakers, contribute to this mission. Yesterday, I had the pleasure of meeting Jaime Werner, a volunteer puppy raiser whose dedication ensures that service dogs like Pico are well-trained and ready to assist individuals like me. She is currently raising her sixth dog, Boston.

Councilwoman Brooke Pinto's introduction of this legislation is a significant step forward in recognizing the importance of service dogs in our community. Navigating the world with myriad disabilities can be tricky, and Pico has been instrumental in my daily life.

As we celebrate National Service Dog Month, let's remember that independence shouldn't be limited. Every individual, regardless of their challenges, deserves the chance to lead a life with greater autonomy. And with the support of service dogs and the organizations that train them, this vision is becoming a reality for many.

Thank you, Canine Companions, for your unwavering dedication. And to Pico, my loyal companion, thank you for being my eyes, ears, and a never-ending source of joy and humor.

Snapshots of Service: Pico's Dedication Amidst a Career of Change

Pico stands behind the American flag for his professional portrait at the US Department of Labor

As I sit at my desk, the hum of assistive technology filling the room, I'm reminded of the many challenges and triumphs I've faced as a disability advocate and federal employee. My early days at the U.S. Department of Health and Human Services (HHS) saw me promoting the newly minted Obamacare, a transformative period in our nation's healthcare landscape. Later, at the USPTO, I was fiercely protecting intellectual property, ensuring the sanctity of innovation and creativity. Today, I promote the impactful mission of the U.S. Department of Labor, protecting our nation's workforce.

Yet, amidst these professional milestones, there's been a constant, loyal presence by my side for the past decade - my service dog, Pico.

September marks National Service Dog Month, a time to honor the incredible animals that transform lives daily. Pico, a graduate of Canine Companions®, joined me after my tenure at HHS. As a wheelchair user with a visual impairment, navigating the world can be daunting. But with Pico, every challenge becomes surmountable. His unwavering support, especially in the workplace, has been nothing short of amazing.

Invisible disabilities, like my chronic pain, often go unnoticed. But Pico sees it all. He senses my discomfort, offering solace with a nuzzle or a comforting presence by my side. He's more than just a service dog; he's a confidant, a protector, and a never-ending source of comedy.

Recently, thanks to the talented Shawn Moore, Pico and I had a moment that encapsulated our journey. As the camera clicked, capturing Pico in his full professional glory, I felt a swell of pride. It was a moment of recognition, not just for Pico's service but for every service animal that has made a difference in someone's life.

To Pico, I say, "Thank you." Thank you for your unwavering service, for the moments of joy, and for the challenges we've overcome together. Here's to many more years of partnership, advocacy, and making a difference.

Join me in celebrating National Service Dog Month. Share your stories, honor these incredible animals, and let's continue the conversation on the importance of accessibility and inclusion in every workspace.

Magic with a Side of Bureaucracy: Navigating Theme Parks and Airlines with Disabilities

Theme Park goers are seen on a rollercoaster

Growing up in sunny California, I was fortunate to be surrounded by some of the world's most iconic theme parks - Disneyland Resort, Universal Studios Hollywood, and Six Flags Magic Mountain. These parks were more than just places of entertainment; they were sanctuaries where I felt included and normal amongst my peers. As someone with multiple disabilities, these visits were moments of liberation where I could feel free to be a kid without being overly self conscious or restrained by disability.

Back in the day, it was standard practice to obtain a visitor's pass from guest services, allowing us to enter from the exit and avoid the long wait times. But times have changed.

Now, Universal is introducing a new protocol. As Michelle Diamentper writes in Disability Scoop, "Starting this week, however, Universal Orlando Resort and Universal Studios Hollywood will require that individuals apply for a special card known as the Individual Accessibility Card prior to their visit in order to qualify for an Attraction Assistance Pass." This card, issued by the International Board of Credentialing and Continuing Education Standards (IBCCES), requires documentation detailing the type of accommodations requested, at least 48 hours before arrival.

Disney by contrast allows disabled patrons to receive return times in the theme park’s mobile app comparable to the ride’s posted wait time.

While new policies aim to prevent misuse, they inadvertently create additional hurdles for disabled patrons. As Jennifer Shelton told The Wall Street Journal, “It’s just another thing we have to think through when travel is already hard and we’re trying to make it as fun as possible.”

Flying, another aspect of my travels, has its own set of challenges. With Canine Companions® Pico by my side, I've had to navigate the maze of paperwork required by the 2020 update to Air Carrier Access Act. While I pride myself on being organized and adept at bureaucracy, there are days when the energy simply isn't there, especially when I travel. The added burden of paperwork is a reality many disabled individuals face, deterring us from accessing services and entertainment. Open Doors Organization is helping streamlining the process for airline passengers flying with Alaska Airlines and JetBlue, still the added layers can be exhausting when you're already depleted from the stress of travel.

While measures to prevent system abuse are essential, it's crucial to ensure they don't inadvertently make life harder for those genuinely in need. As we advocate for more inclusivity, it's essential to strike the right balance, ensuring everyone has the chance to experience the magic of theme parks and the freedom of travel.

Some Travelers Abused Disability Accommodations. Now Comes the Crackdown

Why ADA Compliance Doesn't Always Mean Accessibility

Wheelchair users are seen in the Rose Garden at the White House as President Biden delivers remarks during an ADA celebration.

For the vast majority of my life I've navigated the intricate maze of the Americans with Disabilities Act (ADA). Designed to ensure equal access for all, the ADA has been instrumental in ensuring the rights of disabled people. Yet, in practice, the reality often falls short of the promise. Julie Reiskin, a fellow wheelchair user, captured this sentiment perfectly, telling USA TODAY, "It would be really nice if I could look at a website and have reliable information."

This disparity between expectation and reality isn't just about websites. It extends to physical spaces too. For instance, booking an ADA-compliant hotel room might promise a slightly bigger bathroom, but what's the use if I can't even enter the room due to a heavy door or lack of actuators? This isn't just an inconvenience; it's a barrier that hinders true accessibility.

My personal experiences mirror those of many others in the disability community. Just this summer, I voiced my concerns about a local Starbucks, a place I've frequented for nearly a decade. Their response? They were "in compliance with the ADA." But true access goes beyond mere compliance. Deborah Laufer's journey, involving over 600 cases filed for similar reasons, and now a pending Supreme Court of the U.S. case remarked, "I sometimes ended up sleeping in my car because I could not get an accessible room at a hotel."

The crux of the matter is that the ADA should be viewed as a starting point, not the end goal. True accessibility and inclusion mean going beyond the minimum requirements. As Shira Wakschlag of The Arc of the United States emphasized to Disability Scoop, "ADA testers are essential to ensuring the rights of people with disabilities are enforced and protected."

In our quest for a more inclusive world, let's not just aim for the floor; let's reach for the ceiling. Let's not just be compliant; let's be truly accessible.

Following the Supreme Court overturning of affirmative action earlier this summer, many disability advocates, myself included, expressed concerns about the ADA being next on the chopping block. Sadly, it looks as though our fears were not unfounded.

I invite you to join the conversation, share your experiences, and together, let's push for a world where accessibility is not just a legal requirement but a heartfelt commitment.

'Sleeping in my car.' This Supreme Court case could change how disabled Americans book hotel rooms