Nothing About Us Without Us

The Harmful Myth of “Never Letting Disability Stop You” – Why We Need to Rethink Resilience

A screenshot of a tweet by Ryan Honick (@ryanhonick), posted on March 3, 2020, at 1:59 PM. The tweet reads: 'I don’t know who needs to hear this but the “I never let my disability/pain/illness stop me” is an ableist and harmful narrative. Sometimes chronic issues are debilitating and they do stop you. And you shouldn’t be made to feel guilty about it. Period.'

On March 3, 2020, I wrote a tweet that continues to resurface in conversations about disability and chronic illness:

"I don’t know who needs to hear this, but the ‘I never let my disability/pain/illness stop me’ is an ableist and harmful narrative. Sometimes chronic issues are debilitating and they do stop you. And you shouldn’t be made to feel guilty about it. Period."

I wrote that in the midst of the most painful period of my life, after years of chronic pain. I didn’t expect it to go viral, but it did—and it still does. It has been screen-grabbed, reshared, and discussed across Meta, Instagram, Reddit, Inc., and Twitter/X, popping up repeatedly like clockwork. The response? A mix of gratitude, validation, and, of course, criticism.

Too often, society presents disability as something to be overcome rather than lived with. We hear phrases like:

👉 "Mind over matter!"
👉 "You’re so strong for pushing through!"
👉 "You’re such an inspiration!"

While well-intended, these comments send a damaging message: that acknowledging our limitations means we are weak. They erase the reality of chronic pain, energy limitations, and the simple fact that sometimes, our disabilities do stop us—and that’s okay.

This kind of toxic positivity pressures disabled people to perform an unrealistic level of resilience. It tells us that resting or honoring our limits is "giving up." But accepting the reality of disability isn’t defeat—it’s survival.

Over the years, responses to my tweet have fallen into predictable categories:

✅ “Thank you. I needed to hear this.” Many disabled people found validation in the idea that it’s okay to rest, to pause, to honor what their bodies need.

❌ “This is just giving up.” Some—both within and outside the disability community—claimed my perspective promoted a defeatist attitude. 🤦

These reactions highlight a deeper societal issue: many people are uncomfortable with the idea that disability is, at times, limiting. They need the feel-good narrative of disabled people triumphing over adversity because it reassures them that they would do the same in our position. But disability isn’t a morality test—it’s a reality of life.

Disabled people don’t exist to inspire you. We are not here to be motivational backdrops for non-disabled people. We have our own goals, dreams, ambitions, and struggles—just like anyone else.

Here’s the truth:

• Some days, I can push through. Other days, I can’t—and both are valid.
• Disabled people don’t need to perform resilience for your comfort.
• Accepting our limits isn’t "giving up"—it’s respecting our bodies.

We live in a world that tells us we must constantly justify our existence. That we must "overcome" disability rather than demand societal changes that accommodate us. But disability isn’t a battle to be won—it’s a reality to be acknowledged.

DEI is Under Attack—But Inclusion Can’t Be Optional

A modern office features an illuminated sign reading "Diversity, Equity, and Inclusion: Strength in Unity" with a colorful gradient background. In the background, a diverse group of employees collaborates around a conference table in a well-lit space with large windows.

Every day, I watch as the policies meant to ensure my dignity, my inclusion, and frankly, my survival, get dismantled. It’s not hypothetical. It’s not a distant issue. It’s personal.

Like many disabled professionals, I see the writing on the wall—diversity, equity, and inclusion are under attack in ways that go beyond policy changes. These aren’t just bureaucratic shifts; they send a chilling message about whose existence is valued and whose is not. And for so many of us, that message is hitting hard.

But here’s what I also know: not everyone is backing down. Not every company, every leader, every organization is willing to let progress be erased. Some including Apple, Microsoft, Delta Air Lines, Johnson & Johnson , and JPMorganChase are doubling down, choosing to be louder, more intentional, more committed to inclusion than ever before. And if you’re one of those people—if you believe that workplaces should be places of opportunity for everyone, not just the most privileged—then now is the time to act.

I’ve spent my career navigating the intersections of disability, policy, and workplace equity. I don’t just speak about inclusion—I live it. And I know firsthand what it takes to create workplaces where disabled professionals don’t just survive but thrive.

If your company, conference, or organization is still committed to real DEI—not just as a buzzword, but as a practice—I want to talk. Hire disabled speakers. Bring in disabled consultants. Invest in perspectives that aren’t just theoretical but lived. Because right now, at a time when so many of us feel like our voices are being pushed aside, inclusion can’t just be a quiet value. It has to be a loud, unwavering action.

The Forgotten in the Flames: Why Emergency Planning Must Include Disabled People

A scene of intense wildfires, with palm trees and vegetation engulfed in flames, embers scattering through the air, and a vibrant orange hue dominating the environment.

Reading the recent story from Sonja Sharp at Los Angeles Times about Anthony Mitchell Sr. and his son Justin—a father and son who both had disabilities and died because of inadequate evacuation planning during the devastating LA wildfires—has left me angry and heartbroken. Their deaths were preventable, and yet they were left to wait, pray, and perish. This tragic event reflects systemic failures that disabled people, like me, fear every day.

I can’t ignore how often disabled people are overlooked in emergency planning.

Growing up, I was never truly part of evacuation plans. After 9/11, I remember my math teacher pointing to a football player and saying, “Ryan, that’s your escape plan.” That moment encapsulated the lack of planning, forethought, and value placed on the lives of disabled individuals. Now, as an adult living in a 25-story high-rise in D.C., those fears haven’t gone away. During fire drills or alarms, the elevator shuts down, the hallway doors automatically lock, and I’m left wondering: “Will anyone come?” I’m on supposed watch lists, but those plans are never practiced. The truth is, I don’t have faith that help will come when it matters most.

Anthony Mitchell Sr., an amputee who used a wheelchair, and Justin Mitchell, who had cerebral palsy, couldn’t escape on their own. Firefighters stopped family members from entering the evacuation zone to save them. As the flames closed in, they huddled together, waiting for a rescue that never came.

Officials have known for years that disabled individuals are disproportionately impacted by disasters. A 2019 state audit highlighted how emergency management agencies were woefully unprepared for this threat, despite California being home to 4 million disabled residents, including nearly a quarter-million in Los Angeles​

We can and must do better. Emergency response plans need to be inclusive, regularly practiced, and accessible to everyone. This means involving disabled individuals in planning processes, investing in assistive technology, and ensuring first responders are trained to address the needs of disabled people during disasters.

We’re one-fourth of the global population. Our lives are just as valuable, and our voices need to be heard. Let’s stop apologizing after the fact and start making proactive changes now. The cost of inaction is far too great.