Disability Politics

Project 2025 and America’s Choice: What Trump’s Reelection Means for Disability Rights and DEI

Black background with white text reading 'What's at Stake for Civil Rights: Project 2025,' framed by a gradient border transitioning from purple to blue to pink.

For many in the disability community, the outcome of this election is a profound blow. It's a stark reminder that this is not an anomaly; it's a deliberate choice by the electorate. As disability advocates, we must confront this reality, grieve its implications, and prepare for the arduous journey ahead.

Diversity, Equity, and Inclusion efforts are essential for creating spaces where all people, including disabled individuals, can thrive. Yet, with Project 2025’s clear intent to politicize the federal workforce, these efforts face a direct threat. The plan to replace nonpartisan civil servants with political loyalists doesn’t just jeopardize the integrity of government agencies; it also poses a serious risk to any DEI initiatives within the federal government. When leadership is handpicked to fit a rigid ideological mold, DEI initiatives—particularly those that protect marginalized groups—become targets for dismantling.

For disabled federal employees like myself, this change isn’t abstract. It could mean the erosion of inclusive hiring practices, the rollback of workplace accommodations, and a shift toward a culture that prioritizes conformity over diversity. By undercutting DEI, the federal government risks creating a hostile environment for all who rely on its protections, effectively shutting the door on years of progress in fostering an equitable workplace.

Moreover, Project 2025 aims to politicize the federal workforce by replacing nonpartisan civil servants with loyalists. This shift could transform agencies like the U.S. Department of Justice from protectors of civil rights into enforcers of a singular ideology, jeopardizing the rights of marginalized communities.

In 2016, we told ourselves, "This isn't who we are." Today, we must face the hard truth: This is who we are. Our society has twice chosen a path that marginalizes, excludes, and actively silences people like us. As Scaachi Koul wrote for Slate Magazine, "This is a country where half the population is content in its hatred of women, of queer people, of brown and Black people, of anyone who comes to the United States from a poorer country."

Acknowledging the pain doesn't mean we give up. We have work to do, even if it's uphill, exhausting, and heartbreaking. But we have to begin by mourning what we've lost—the hope for a more inclusive future, the belief that our voices mattered, and that progress was possible. We may be in the crosshairs, but we are not powerless. We are still here, advocating, fighting, and demanding that our nation's policies reflect everyone's needs, not just those who conform to a narrow idea of "American."

So let's grieve today, gather strength, and prepare for what comes next. Tomorrow, we continue the work, not because it's easy, but because it's necessary.

A Legacy of Inclusion: Thank You, President Biden

President Joe Biden, wearing a dark suit, light blue tie, and aviator sunglasses, waves to the camera.

I’ll be honest: the news that President Biden won't seek reelection in 2024 hit me hard. It's a defining moment for a leader who has profoundly shaped the disability community. His tenure has brought about unprecedented changes and set a new standard for inclusion and accessibility. As we reflect on his legacy, it's clear that President Biden's impact will be felt for generations to come.

Did you know that in 2023, the employment-population ratio for people with disabilities hit 22.5%? That’s the highest since the Bureau of Labor Statistics started tracking this data in 2008. The unemployment rate for people with disabilities dropped to 7.2%. These numbers reflect real, positive change in our lives.

Biden's commitment to the disability community is clear. Take Medicaid, for example. It now covers over 80 million Americans, including many of us with disabilities. He also boosted special education funding by $2.6 billion in 2021.

Let’s talk about student loans. The U.S. Department of Education's PSLF program was a mess, with a 99% rejection rate under the previous administration. President Biden stepped in and made real changes. He streamlined the application process, expanded eligibility, and fixed past errors. Now, thousands of public servants, including many with disabilities, are finally getting the loan forgiveness we were promised.

Air travel has long been a nightmare for many with disabilities. Recently, the U.S. Department of Transportation announced a proposed rule aimed at ensuring passengers who use wheelchairs can stay in their own wheelchairs while flying. This rule, if implemented, would mark a monumental shift in air travel accessibility.

The new proposal also includes several key improvements. Airlines would be required to notify passengers immediately if their wheelchair has been mishandled, repair or replace damaged wheelchairs, and return lost wheelchairs to the passenger's final destination within 24 hours.

We owe President Biden a big thank you. His dedication to disability rights has been unwavering. His administration’s focus on accessible infrastructure has modernized public transit systems across the country, making it easier for wheelchair users like me to get around. These improvements have touched the lives of countless people who rely on public transportation daily.

The policies President Biden put in place have laid a strong foundation for future advancements in disability rights and inclusion. As we continue to advocate for equity and access, we need to build on his legacy to create a society where everyone, regardless of ability, can thrive.

Thank you, President Biden, for your unwavering support and dedication to making our lives better. Your legacy will endure, and we will carry the torch forward.

One Step Away: Reflecting on Trump's Narrow Escape and Disability

Law enforcement officers gather at the campaign rally site for Republican presidential candidate former President Trump.

Evan Vucci/AP

This weekend's events at Donald Trump's rally in Pennsylvania have left us all grappling with numerous questions. How could such a security failure occur? What were the motivations behind the shooting? How will this historic moment reshape US politics in the 2024 election? Amidst the whirlwind of these discussions, one question has been persistently echoing in my mind: What does this assassination attempt say about our current views on disability in this country?

As someone who lives with multiple disabilities, this question is not just rhetorical. Former President Donald Trump has openly and notoriously mocked disabled individuals and wounded veterans. The irony is that by sheer luck, he narrowly avoided becoming part of the community he has so often disparaged. This incident starkly reminds us that we are all just one moment away from joining the ranks of the disabled community.

During the chaos following the shooting, Democratic strategist Johnny Palmadessa told Reuters he witnessed elderly and disabled attendees struggling to evacuate the venue. He described scenes of mothers shielding their children from bullets, husbands protecting their wives, and elderly people giving up on trying to escape because they couldn't move quickly enough. Palmadessa observed, "I watched elderly people struggle to leave fast enough. Some of them practically gave up and decided, I'm just going to wait here because I can't get out right now. That's not okay."

This heartbreaking reality is all too familiar to many of us in the disability community. During emergencies, our needs are often overlooked, leaving us vulnerable and, at times, resigned to our fate. The U.S. Secret Service, while prioritizing the protection of the president, has a responsibility to ensure the safety of all attendees, including those with disabilities. Their failure to do so at this event is a glaring oversight that demands immediate rectification.

The broader implications of this incident extend beyond just the physical safety of disabled individuals at public events. It forces us to confront how deeply ingrained ableism is in our society. Trump's history of mocking disabled individuals is not just offensive; it's indicative of a societal mindset that devalues and disregards the disabled community. As a result, the protections and considerations that should be in place are often absent.

We must advocate for inclusive emergency preparedness plans that account for the needs of disabled individuals. This includes ensuring accessible egress routes, providing adequate assistance during emergencies, and training all personnel on how to effectively support disabled attendees. The Trump assassination attempt is a stark reminder that our current systems are insufficient and that immediate action is necessary to prevent future tragedies.

No Way to Run a Country? The Harmful Narratives of Ableism in Media

Cover of The Economist magazine dated July 6th-12th, 2024, featuring an image of a walker with the Presidential Seal of the United States and the headline 'No Way to Run a Country’.

As a disability advocate, I am often reminded of the pervasive ableism that infiltrates many aspects of our society. The recent cover of The Economist, depicting a walker with the presidential seal and the caption "No way to run a country," is a stark example of this issue. Regardless of political views or the current debates around President Biden's fitness, framing his capability to govern based on a disability is not only cruel but highlights a deep-seated ableism that must be addressed.

This kind of representation perpetuates harmful stereotypes, suggesting that those who use mobility aids are less capable. Such images can have far-reaching consequences, reinforcing negative perceptions and fostering environments where people with disabilities feel pressured to hide their conditions. The Economist should be ashamed of themselves for this front-page cover and for continuing to push a harmful narrative that deems individuals with disabilities as less competent.

The Economist's cover is not just an isolated incident; it reflects a broader issue within media representation. This portrayal underscores the editorial team's lack of understanding and empathy toward disability. It's a reminder of the significant work needed to educate and shift societal perspectives. Media outlets have a powerful influence on public opinion, and with that power comes the responsibility to portray all individuals fairly and accurately.

This is not the first time we've seen such blatant ableism in politics. Senator John Fetterman faced criticism for using assistive technology to perform his duties, with many questioning his ability to serve. While the office of the President is indeed a different challenge, ableism should have no place in our political discussions. As advocates, we must highlight these issues and push for a more inclusive narrative recognizing the capabilities of all individuals.

Ableist portrayals like The Economist's cover can discourage employees from disclosing their disabilities, fearing judgment and discrimination. This reluctance prevents many from accessing necessary accommodations that could enhance their productivity and well-being. It's crucial that we create workplaces where disability disclosure is met with support and understanding, not prejudice.

To combat these harmful narratives, media organizations must take actionable steps to improve their representation of individuals with disabilities. This includes hiring more people with disabilities in visible roles, consulting with disability advocates when creating content, and committing to ongoing education on disability issues. By doing so, they can help dismantle ableist stereotypes and promote a more inclusive society.

Let's use this moment to spark a conversation about ableism in the media and beyond.

Pico's Farewell Tour: From Counter-Surfing to Corporate Change

Ryan and Pico pose for the camera. Pico’s paws rest on Ryan’s lap.

Dear Pico:

As we kick off 2024 and you officially hang up your service dog vest and trade it in for a well-deserved life of leisure, sprawled out on your deluxe Big Barker dog bed (a far cry from our early training days), I can't help but reminisce about our adventures - filled with advocacy, more than a few antics, and remarkable achievements.

Let's rewind to our first public outing, shall we? Ah, Potbelly Sandwich Works. The scene of the 'Great Sandwich Heist'. You, the dapper dog, thought it'd be hilarious to leap at the counter as if it had whispered sweet nothings to you. Me? I'm trying to play it cool, thinking, "Is this a test? Did Canine Companions® teach him this?" You were testing my handling skills, and I was trying not to crack up.

Then came our crusade for change. Your charm and intelligence were pivotal in spearheading policy changes with giants like Uber, Lyft, and the Washington Metropolitan Area Transit Authority (WMATA). You weren’t just a cute face; you were a force to be reckoned with and always camera ready for maximum impact. Your presence alone was enough to turn boardroom discussions into action plans for more inclusive and accessible spaces.

And let's not forget our victories with Starbucks and Petco. Your tail-wagging enthusiasm and our relentless advocacy turned everyday into an adventure. We made those spaces not just accessible, but welcoming for people like us and the 42 million disabled people nationwide.

Through it all, you've been my biggest support against chronic pain and my secret weapon in advocating for a world that sees wheels and paws not as limitations, but as badges of honor. You've wagged, I've wheeled, and together, we've been unstoppable.

As you embark on this new chapter of couch surfing and treat tasting, remember, retirement doesn't mean you're out of the game. It just means you're playing in a new, comfier league. And as for me, I'll keep the advocacy torch burning, inspired by your legacy – a legacy that includes an impressive record of sandwiches stolen and right from under my nose.

Here's to you, Pico. For the laughter, the achievements, and the unwavering companionship. You're more than a service dog; you're a trailblazer, a friend, and the best pup I could have asked for. Enjoy every moment of your retirement – you've earned it, buddy.

Pico, in your retirement, remember to live by your own advice: if you can't eat it or play with it, just take a nap on it.

With love, laughter, and gratitude
-Ryan

Beyond the 1%: Amplifying Disabled Voices in Hollywood and Halls of Power

From left: Zayre Ferrer, Monica Cecilia Lucas and Gisselle Legere.

In the vibrant tapestry of our society, the disabled community weaves a narrative often left unexplored, yet profoundly impactful. As we celebrate National Disability Employment Awareness Month, let’s delve into the realms of representation, adaptability, and the stark disparities in political representation for disabled individuals.

“Roughly 20% of Americans live with a disability, yet less than 1% of Hollywood writers are disabled,” a stark revelation from the Inevitable Foundation. The recent Writers Guild of America West deal, promises to address specific issues impacting disabled writers in Hollywood most. Gisselle Legere, a Cuban American writer, heralded the WGA’s victory in setting a minimum number of writers who must be staffed on shows as the “biggest win,” illuminating a path toward more inclusive representation in the writers' rooms.

In the political arena, the narrative unfolds similarly, yet with its unique challenges. ChrisTiana ObeySumner MPA, MNPL, a multi-disabled Seattle City Council candidate, embodies the resilience and determination that disabled candidates bring to the political table. Yet, systemic barriers and ableist backlash often stymie their journey. A mere one in 10 elected officials have disabilities, according to a 2018 study from Rutgers University, underscoring a glaring disparity in representation that demands our attention and action.

Sarah Blahovec, co-founder of Disability Victory, astutely observes, “Disabled people are adaptable. We’re creative. We’re problem-solvers. And we’re resilient because every day we navigate a society that is not built for our needs.” These are not just qualities; they are a testament to the untapped potential that disabled individuals bring to leadership roles in every sphere of our society.

As we navigate through NDEAM, let’s champion for more than just hiring or electing disabled individuals. Let’s advocate for providing an upward path toward mobility in their jobs, giving them a chance to flourish, and arming them with the tools they need to be successful. Let’s ensure that the diverse pool of disability is represented in all decision-making rooms, from the board room, to the writers room, to elections. We need to be in the room where it happens.

In the spirit of fostering a society where every thread is valued, let’s weave a narrative where disability is not seen through a lens of limitation, but a spectrum of possibilities and diverse perspectives. Let’s be the catalysts for a future where equity is not just a metric but a lived reality.

What the WGA deal with Hollywood studios means to writers with disabilities

Why Relaxed Dress Codes Can Be a Game-Changer for People with Disabilities

Sen. John Fetterman (D-Pa.) arrives for a vote at the U.S. Capitol May 1, 2023.

In light of the recent changes to the Senate's dress code, as detailed by Axios and Rolling Stone, it's essential to view this shift as more than just a fashion statement. This change, announced by Senate Majority Leader Chuck Schumer and reportedly inspired by Senator John Fetterman of Pennsylvania, is a reflection of a reasonable accommodation for someone with a disability.

Sen. Fetterman, who has been candid about his struggles with depression, is protected under the Americans with Disabilities Act. Changes to dress codes are considered a reasonable accommodation, and this should be seen as a progressive step for the disability community. Societal standards, often set by non-disabled neurotypical individuals, can be both physically and mentally taxing for those with disabilities. As someone with cerebral palsy and fine motor challenges, I can attest to the significant energy and mental effort required to don formal attire. My clothing choices are often a reflection of my energy levels, not my work ethic or capability.

Senator Susan Collins humorously threatened to wear a bikini to work in response to the relaxed dress code. Meanwhile, Senator Schumer officially altered the rules around appropriate attire, instructing the Sergeant at Arms to cease enforcing guidelines requiring business attire on the floor. This change allows lawmakers like Pennsylvania’s John Fetterman to embrace casual clothing without violating protocol. Fetterman's attire has been a part of his image throughout his political career. After taking a medical hiatus to seek treatment for clinical depression, he's chosen comfort over costume. This decision, though not directly referencing Fetterman, has irked some Republicans, leading to criticism of him.

In the disability community, we often use "spoons" as a metaphor to describe our energy consumption. It can take someone with a disability significantly more energy to accomplish the same tasks as our non-disabled counterparts. A strict dress code can be challenging for people with disabilities to maintain consistently. My personal experience of ditching formal wear for the office has resulted in increased energy that I can redirect toward my actual work. Being comfortable allows me to be more relaxed and focused. I applaud Senator Schumer for his recent decision and hope that those opposing this change can learn empathy.

Republicans Are Melting Down Over the Relaxed Senate Dress Code