A Salute to Advocacy: Celebrating LinkedIn's Top Voices in Disability Advocacy

A picture of Ryan with a blue background and a Linkedin Top Voices graphic that reads: "Ryan Honick: Disability Advocate, Speaker, Professional Persuader."

This week, I was humbled to be featured as a Top Voice in Disability Advocacy by LinkedIn for the second straight year. Advocacy work is its own reward, but this recognition and the platform it provides to amplify our message is deeply appreciated.

Amidst all the chatter about various social media platforms and their impacts on social good, I firmly believe that LinkedIn stands out as the most beneficial and inclusive.

The honor has connected me with fellow advocates and allies, helping to magnify our collective message about the importance of diversity, equity, inclusion, and belonging for disabled people in our society. I am honored to be a Top Voice alongside so many inspiring advocates.

A heartfelt congratulations to Marisa Hamamoto, Lachi ♫, Donna Cruz Jones, Margaux Joffe, CPACC Jeremy Andrew Davis, Keely Cat-Wells, Meryl Evans, CPACC (deaf) Brandon Farbstein, Haben Girma, Julie Harris, Emily Ladau, Becca Lory Hector, Catarina Rivera, MSEd, MPH, CPACC, Natalie Trevonne, and Tiffany A. Yu, MSc. Your tireless efforts to create an equitable world do not go unnoticed.

Each of these advocates brings a unique perspective and voice to the table, and I encourage you to follow their work. Their stories, their struggles, and their victories are a testament to the power of advocacy.

As we celebrate this recognition, let's remember that our work is far from over. Every day, we strive to create a world where disability advocacy is no longer needed, where disability discourse is normalized, and where people with disabilities are treated as equals.

Special thanks to Marisa Hamamoto for the awesome graphic.

Advocacy Burnout: The Untold Story of Disability Activists

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A black candle with a wild flame burns surrounded by smoke and a dark desolate background.

As we near the end of Disability Pride Month, I find myself reflecting on the journey we've embarked on together. Nearly every day, I've shared stories, raised awareness, and spotlighted the diverse aspects of disability life. The response has been overwhelming, and I'm deeply grateful for each one of you who has engaged with my posts, learned something new, or found solace in shared experiences.

But today, I want to shed light on a seldom-discussed aspect of disability advocacy: the exhaustion. The reality is, advocacy doesn't pause when the calendar flips or the spotlight dims. We advocate every day, not because we crave attention or conflict, but because we must. We strive to live in a world where our advocacy is no longer necessary, where disability discourse is so normalized that it doesn't require amplification.

There are days when the weight of this work feels unbearable. Days when I wish I could "just live my life," as some well-meaning yet misguided individuals have suggested. But here's the thing: I advocate so that I can do exactly that. So that we all can.

We yearn for a future where months like Disability Pride or National Disability Employment Awareness Month are no longer needed because people with disabilities are treated as equals. We yearn for a future where we don't have to justify our existence or fight for our rights. We yearn for a future where we can just live our lives.

Today, I'm not spotlighting a specific issue or cause. Instead, I'm offering a behind-the-scenes look at the toll advocacy takes. It's rewarding, yes, but it's also physically, mentally, and emotionally draining. And I promise you, your disabled friends are feeling it too.

We can't wait for the day when our advocacy puts itself out of business, as my entrepreneurial father Craig Honick once said. But until then, we need you. We need our allies to step up, to share the load, to amplify our voices. We are tired, but we are not defeated. And with your help, we can build a world where disability advocacy is a chapter in history books, not a daily fight.

Thank you for being part of this journey. Let's keep the conversation going, not just this month, but every day.

The Power of Universal Design: A Look at Comcast's Innovative Remote

Illustration of Thomas Wlodkowski, VP of Accessibility at Comcast

Today as part of the ongoing celebration of Disability Pride Month, I want to spotlight a concept that's revolutionizing the way we think about accessibility: Universal Design. As a disability advocate, wheelchair user, service dog handler, and someone with a visual impairment, I've experienced firsthand the transformative power of Universal Design.

One of the most exciting examples of this is Comcast's Xfinity Large Button Voice Remote highlighted in a recent piece in Fast Company. This device, the brainchild of Thomas Wlodkowski, VP of Accessibility at Comcast, is the first remote built from the ground up with accessibility in mind. Wlodkowski, who has been blind since birth, has a simple yet powerful goal: “To make sure that the full menu of experiences within our entertainment service is available to as many customers as possible.”

Before this remote, Comcast customers seeking accessibility features were mailed a third-party device that was often seen as clunky and "medical." Wlodkowski knew there had to be a better way. He inspired his colleagues to create a device that was not only accessible but also intuitive and practical for all users.

The result? A sleek remote that’s 7 inches long and 2 inches wide, with larger buttons, bigger text, backlighting, an easier battery-change mechanism, built-in voice-command capability, and an instruction manual that speaks. The design process involved conducting focus group sessions with residents from New Horizons, a supported living facility in Connecticut for people with physical disabilities.

The response has been overwhelmingly positive. Comcast is now shipping about 2,000 units of the Large Button Voice Remote each week, up from 800 when the device first launched. The remote is free to all Comcast X1 and Flex customers, who can request it through Comcast’s Accessibility Support Center.

This remote is a testament to the potential of Universal Design in transforming the future of accessibility. It serves as a reminder that when we design with everyone in mind, we create a world that is more inclusive and equitable.

As we continue to celebrate Disability Pride Month, let's remember the power of Universal Design and continue to push for more accessible and inclusive designs in all aspects of our lives.

This Comcast exec did the impossible: He created a TV remote that’s actually well designed

Free Expertise? The True Cost of Devaluing Disability Advocacy

A colorful backdrop with a silver broadcaster’s microphone at the center.

In my life as a disability advocate, I've had the honor of standing up for countless causes, initiatives, and events. It's been a journey filled with moments that have inspired me, connections that have broadened my worldview, and the rewarding sense that I'm making a real difference. But there's a troubling trend that's been casting a shadow over these experiences: the expectation that my expertise, and that of many others in my field, should be offered without any compensation.

A fairly common exchange with a potential client:

Them: We’d love to have you speak at our event. 

Me: Fantastic. Here are my rates.

Them: Oh, you charge? We have no budget. 

This isn't just about money. It's about respect, value, and recognition. When organizations come to us for our expertise but hesitate at the idea of paying for it, they're sending a clear message: they don't believe our knowledge, our time, and our energy are worth investing in. This devalues our work, our experiences, and our contributions to the very causes these organizations claim to champion. You can't truly advocate for diversity, equity, inclusion, and access without compensating the thought leaders whose opinions and expertise you value.

Remember, you're reaching out to us because we're established leaders in our field. We don't need exposure as a fringe benefit for free labor.

This issue isn't just about me or about disability advocacy. It's a widespread problem affecting countless experts and professionals who are asked to give their time and knowledge for free. But as we approach Disability Pride Month, it's time to shine a spotlight on this issue in our field.

We, as disability advocates, bring a unique perspective to the table. We offer insights that can't be found in textbooks or online articles. We share personal experiences, hard-earned wisdom, and a deep understanding of disability issues. This expertise is valuable and should be treated as such.

It's time for a change. It's time for organizations to recognize the value of disability advocacy and to invest in it. It's time for us to stand up and say, "Our expertise is worth paying for."

As we approach Disability Pride Month, let's start a conversation about this. Let's challenge the status quo and advocate for the recognition and compensation we deserve. Let's do this together.

I invite you to share your thoughts, experiences, and ideas in the comments below. Let's use our collective voices to make a difference. And if this message resonates with you, I encourage you to share it with your network. Together, we can change the narrative.

How AI Can Make Disabled People Stronger Advocates

Recently, a neighbor in my apartment complex became increasingly irate anytime Canine Companions® Pico and I would pass her door. She claimed his incidental shedding as we walked past was done intentionally, and she didn't appreciate his ruining her welcome mat, which she had placed in a public hallway. Her disdain became so pervasive she was unwilling to engage in civil discourse.

When I raised my concerns with the property manager, I was met with the suggestion that I relocate if we couldn't find a "peaceful solution." It was a frustrating and exhausting experience.

I went into advocacy mode. I knew the laws. I knew I could address the situation from the perspective of the ADA, housing laws, and even state fire codes. But I just didn't have the energy. I thought briefly about dropping the issue completely, but I knew that would be to my detriment as the situation was ongoing.

And then it came to me: AI is my friend.

I turned to AI to craft a letter to my leasing office, documenting our meeting, their response, and the concerns I still had. I worked with the AI in much the same way I would engage with a friend or colleague at first. Imagine explaining what happened to them over text. I didn't think about it too much. I simply documented what happened as best I could without being overly concerned with whether I was doing it "right."

As I progressed, I wanted something with a bit more force, something harder for management to dismiss. So I tweaked my approach. I asked the AI to cite relevant local laws that might strengthen my position. Almost instantly, I was presented with research pertaining to building safety, means of egress, and fire codes, as well as a bit of legal language.

No system is perfect, and I still did my due diligence in verifying the accuracy; nothing will ever replace the human element and the lived experiences that shape advocacy work. But I had a very strong foundation in record time. The hours and aggravation saved, the research placed right in front of me in the blink of an eye? I couldn't help but think of the old Mastercard commercial.

Comcast Internet: $50 a month

Subscription to ChatGPT-4: $20 a month

Energy saved as AI helps you advocate? Priceless.

AI is the ultimate life hack, and I can't wait to see what's next. This technology is here, and used wisely, can be the ultimate energy saver. Yes, it's only as good as its inputs and the questions we ask, but that is the very nature of the human brain too. When we ask better questions, we get better answers. By leveraging these technologies, disabled people can continue to do the advocacy that fuels us without feeling burnt out by the nitty-gritty. For those just starting on their advocacy journey, the playing field is instantly leveled. The question isn't "Should we be using this technology?" Rather, the focus should be on how.

The Importance of Disability Representation in Fashion

Three models wearing adaptive SKIMS clothing

"Taylor Lindsay-Noel says her “jaw dropped” after seeing the clip, which has been making its rounds on social media this week. “Disabled people are here to stay, whether you want them to be here or not,” she said in a TikTok directed to [Candace] Owens. “And we deserve to be seen in all forms of media, including lingerie and shapewear.”
—Natalie Michie, FASHION Magazine

In the wake of recent comments from political commentator Candace Owens deriding SKIMS for their recent ad campaign promoting adaptive clothing, I became instantly frustrated and annoyed before quickly turning my mind to curiosity. Whenever someone attacks diversity, equity, and inclusion efforts, one of my primary questions becomes, why?

Owens openly and proudly detesting these efforts as “ridiculous” is an indicator of just how far we have to go. People are fearful either of what they don’t understand, or what threatens them. To view DEI efforts as tiresome, patronizing, and being taken too far, as Owens does, is a tacit admission of privilege. The very idea that disability is something to be prioritized, placed front and center with pride and joy, to be celebrated and appreciated, must make someone as narrow-minded as Candace Owens fearful.

Ableism is not new. The disabled community confronts it in our daily lives whether it’s an inaccessible environment, questioning our capabilities in the workplace, or general derisive comments. What has increased in recent years is the brazenness by those in positions of power who publicly mock our right to exist as we are and not be ashamed for it. Candace Owens is a symptom of systemic ableism, she is not the cause.

Additionally, we have brands like Levi Strauss & Co., who late last week announced a partnership with Lalaland.ai, a digital fashion studio to bring AI-generated models to their modeling campaigns in an effort to increase diversity. While Amy Gershkoff Bolles, Ph.D. Bolles, global head of digital and emerging technology strategy at Levi Strauss & Co.noted that AI would ‘likely’ never fully replace human models, the caveat alone is concerning. AI-generated imagery aimed at the disability population certainly has the potential to increase revenue, but doing so artificially while claiming to champion DEI as a “top priority” is disingenuous. I’m reminded of the 2022 campaign by Pottery Barn last summer that proudly introduced its Accessible Home furniture line without employing any disabled models.

Despite what Candace Owens, or the marketing team at Levi Strauss & Co. has to say, disabled people aren’t going anywhere. As 20% of the global population, we deserve to see ourselves everywhere, and compensated accordingly. If that creates discomfort for you, interrogate why.

I’m thankful to the many disability advocates who continue to call out the harmful impact of ableism.

How The Twitter Layoffs Affect The Disability Community

The Twitter Logo with the quote “Twitter can not become the de facto Town Square Musk envisions at the expense of the accessibility that once made it great.” Attributed to Ryan Honick

If users want to emphasize how important the continued prioritization of accessibility actually is, we need to lean into one of the best parts about Twitter: how easy it makes it to amplify a cause.
-Alexa Heinrich, Adweek

For many disabled activists, Twitter has long been a place to connect, amplify, and create change. I owe much to a platform that allowed all of that to happen. Conversations with one-time virtual strangers turned into lifelong friends and allies, virtually and otherwise. The platform was never perfect, and detractors abound, but advocacy always faces pushback. Still, Twitter served as an important space where many found community and support as well as a direct line to key influencers; from journalists and brands to celebrities. Twitter was the first social network where it seemed accessibility was its foundation—in more ways than one.

Prior to layoffs, The Accessibility Experience Team was working on myriad projects focused on improving the user experience. For folks with visual disabilities, the team revamped its icons and automated reminders for the use of alt-text. The deaf community saw improvements with captions, and for those with sensory sensitivities Twitter updated its app sounds.

Unfortunately, all of that progress is poised to stop as Musk looks for ways to improve profitability following a number of high-profile advertisers rethinking their relationship with the platform. Companies including General Mills, Oreo company maker Mondelēz International and Pfizer Inc., have temporarily paused their Twitter advertising, according to The Wall Street Journal.

That pressure, coming from groups like Color Of Change, Free Press, the Anti-Defamation League, and GLAAD is the result of Musk haphazardly cutting teams dedicated to diversity, equity, inclusion, and access.

“We are witnessing the real-time destruction of one of the world’s most powerful communications systems,” Nicole Gill director of Accountable Tech told MarketWatch.

Sandra Sucher, a professor of management at Harvard University, told The New York Times Twitter’s cuts were among the most poorly handled that she had seen.

Speaking at an investment conference in New York Friday, Musk said: “Our goal is with Twitter, how do we get 80% of the public to join a digital town square and voice their opinion and exchange ideas and once in a while change their mind?”

With his latest actions, Musk is deliberately leaving out the 20% of the population with disabilities, setting Twitter up to become yet another inaccessible space where disabled people find ourselves unwelcome. Twitter can not become the de facto Town Square Musk envisions at the expense of the accessibility that once made it great.

How Do You Disclose a Disability During a Job Search?

Thank you Lora Korpar and the team at LinkedIn for the opportunity to be a voice on this important topic!

How Do You Disclose a Disability During a Job Search?

Crist’s Running Mate Says Past Special Ed Experience Qualifies Her to Deal with GOP Legislature

Charlie Crist (D., Fla.) announces his running mate, Karla Hernández-Mats in Hialeah, Fla., August 27, 2022.

"Karla Hernandez-Mats, teachers’ union heavyweight and running mate of Florida Democratic gubernatorial nominee Charlie Crist, was caught at a campaign event Tuesday claiming that her experience working with special needs children prepared her to contend with the state’s Republican-dominated 'dysfunctional legislature.'"
-Caroline Downey, National Review

Regardless of politics, nobody should equate Special Education students with "dysfunction" to score cheap points. The irony is, Casey DeSantis coming to the defense of disabled students is laughable when, as Governor, her husband actively refused to enforce mask mandates that would have allowed many of those same students equal access to education.

Zooming out for a moment, I want to talk about language around disability. There is nothing "special" about a disabled student getting the tools, resources, and accommodations they need to succeed academically and I personally cringe when I see the words "special needs" connected to equity and access for disabled people. To borrow a phrase from my friend Emily Ladau, "My only 'special' needs are that I occasionally enjoy being fanned with grapes."

In academia I would love to see a shift toward reframing Special Education as Accessible Education because that's really what it is. Similarly, in the workplace, Reasonable Accommodations can be seen as Productivity Enhancers.

The needs of disabled people are not "extra" or "special", or anything else that would suggest an undue burden on society. We get enough of that feeling on a daily basis simply existing. We don't need it negatively reenforced with language that perpetuates that myth.

Some may see this as splitting hairs. Language is powerful and can and should be a part of how we emphasize, teach, and talk about Diversity, Equity, Inclusion, and Access.

#DEIA, #DEI #diversityequityinclusion #accessibility #education #specialneeds #specialeducation #disability #inclusion #accommodations

Quiet Quitting Your DEIA Work

Friendly reminder to #leadership and teams in charge of #diversity, #equity, #inclusion, and #accessibility efforts: The ADA should be considered the bare minimum from an access POV. #Disability is diverse. Not sure what someone needs to thrive? Ask. Aim higher than the minimum. Your employees will thrive and everyone wins.

Focusing solely on ADA compliance rather than making something truly accessible in 2022 is the equivalent of #quietquitting #DEIA work.