Challenging Misconceptions: The Power of Reasonable Accommodations in the Workplace

With her guide dog Paul at her side, Maya Larson signs with her boss Darlene Zangara, executive director of the Minnesota Commission of the Deaf, Deafblind and Hard of Hearing in St. Paul, Minn. (Glen Stubbe/Star Tribune/TNS)

Today I'm reflecting heavily on the importance of reasonable accommodations in the workplace. These are not preferences or luxuries, but necessities that level the playing field for disabled employees like myself. They are equalizers, not special treatments, and they are as diverse as the individuals who require them.

The process of disclosing a disability and requesting accommodations is fraught with challenges. It's not a step taken lightly. By the time an employee discloses a disability, they've likely exhausted all other options to adapt their work environment independently. As a wheelchair user living with Cerebral Palsy, a service dog handler to Canine Companions® Pico, and someone living with a visual impairment and chronic pain, I can attest to the discomfort and apprehension that comes with this disclosure.

The latest report from the Disability:IN and the Disability Equality Index for 2023 found that only 4-6% of employees openly disclose disability in the workplace, despite 97% of employers encouraging them to do so. This discrepancy could be due to misconceptions about disability and job performance, perceived barriers to upward mobility, or a general misunderstanding about disability overall by the employer.

As highlighted in a recent article on Disability Scoop, Occupational Therapist Elizabeth Duffy put it beautifully. "Duffy said employers can adjust to accommodate different ways of learning and absorbing information. That could include scheduling flexibility and making sure meetings aren’t the only way to deliver updates and announcements to staffers." This is a prime example of how simple accommodations can make a significant difference in an employee's ability to perform their job effectively.

However, the process of requesting and receiving accommodations can often feel adversarial, leaving employees feeling beaten down and less likely to seek further accommodations in the future. This is counterproductive, as it ultimately hampers job performance.

The future of work for disabled employees is promising, with industries expected to grow over the next decade, as highlighted in a recent Forbes article by Diane Winiarski. But this growth must be accompanied by a commitment to diversity, equity, inclusion, and access. Employers must reassess their reasonable accommodation processes and strive for a more inclusive and equitable workplace.

Reasonable accommodations are not an attempt to "gamify" the system. They are a necessity for disabled employees to perform their jobs to the best of their ability. Let's continue to challenge misconceptions, promote understanding, and advocate for a more inclusive workplace.

With More Neurodivergent Workers, Employers Add Support

The ADA Under Siege? What the Supreme Court’s Latest Ruling Means for Disability Rights

A pull quote from Supreme Court Justice Ketanji Brown Jackson, “it would be deeply unfortunate if the Equal Protection Clause actually demanded this perverse, ahistorical, and counterproductive outcome.”

The recent U.S. Supreme Court decision to overturn race-conscious admissions in colleges has left me, as a disability advocate, deeply concerned. The ruling, which challenges affirmative action, makes me wonder: What does this mean for other minority groups, especially the disabled community?

With this ruling, the Supreme Court continues its historic march backward on civil rights; seemingly hellbent on taking them all back piece by piece.

Will Hild of Consumers'​ Research told The Washington Post the ruling “will put the wind in the sails of groups like ours, who want to get the woke, racially based hiring and promotion schemes out of corporate America.” This statement raises alarm bells. If the court is willing to challenge affirmative action, is the Americans with Disabilities Act (ADA) next?

Furthermore, Hild mentions that legal precedents allowing race-conscious admissions have been a “fig leaf” for private sector diversity initiatives. With this ruling, he predicts a “free-for-all on pushing back against that.” This suggests that the ruling could embolden challenges to diversity initiatives across the board, including those aimed at disability inclusion.

In a scorching dissent, Justice Sonia Sotomayor stated that “the devastating impact of this decision cannot be overstated.” She added that the decision “cements a superficial rule of colorblindness as a constitutional principle in an endemically segregated society where race has always mattered and continues to matter.”

Justice Ketanji Brown Jackson, wrote in her dissent that “it would be deeply unfortunate if the Equal Protection Clause actually demanded this perverse, ahistorical, and counterproductive outcome.”

The ADA has been a cornerstone for disability rights, ensuring equal opportunities for people like me. I am one of the 61 million disabled adults in the United States. As a wheelchair user and service dog handler to Canine Companions® Pico, the ADA has been instrumental in my life. But this ruling might embolden groups to challenge not just racial diversity but diversity as a whole.

We must remain vigilant and proactive. The progress we’ve made in disability rights is monumental, but it’s also fragile. We must ensure that this ruling does not become a precedent for eroding the protections that the ADA provides.

As we enter Disability Pride Month, as we celebrate Independence Day, we must not become complacent. I urge you all to stay informed, engage in discussions, and stand up for the rights of all minority groups. Our diversity is our strength. Let’s protect it.

#DisabilityRights #SupremeCourt #ADA #ProtectDiversity #AffirmativeAction #SCOTUS #CivilRights #StayInformed #EngageInChange #DEI #DEIA #DisabilityPride

Free Expertise? The True Cost of Devaluing Disability Advocacy

A colorful backdrop with a silver broadcaster’s microphone at the center.

In my life as a disability advocate, I've had the honor of standing up for countless causes, initiatives, and events. It's been a journey filled with moments that have inspired me, connections that have broadened my worldview, and the rewarding sense that I'm making a real difference. But there's a troubling trend that's been casting a shadow over these experiences: the expectation that my expertise, and that of many others in my field, should be offered without any compensation.

A fairly common exchange with a potential client:

Them: We’d love to have you speak at our event. 

Me: Fantastic. Here are my rates.

Them: Oh, you charge? We have no budget. 

This isn't just about money. It's about respect, value, and recognition. When organizations come to us for our expertise but hesitate at the idea of paying for it, they're sending a clear message: they don't believe our knowledge, our time, and our energy are worth investing in. This devalues our work, our experiences, and our contributions to the very causes these organizations claim to champion. You can't truly advocate for diversity, equity, inclusion, and access without compensating the thought leaders whose opinions and expertise you value.

Remember, you're reaching out to us because we're established leaders in our field. We don't need exposure as a fringe benefit for free labor.

This issue isn't just about me or about disability advocacy. It's a widespread problem affecting countless experts and professionals who are asked to give their time and knowledge for free. But as we approach Disability Pride Month, it's time to shine a spotlight on this issue in our field.

We, as disability advocates, bring a unique perspective to the table. We offer insights that can't be found in textbooks or online articles. We share personal experiences, hard-earned wisdom, and a deep understanding of disability issues. This expertise is valuable and should be treated as such.

It's time for a change. It's time for organizations to recognize the value of disability advocacy and to invest in it. It's time for us to stand up and say, "Our expertise is worth paying for."

As we approach Disability Pride Month, let's start a conversation about this. Let's challenge the status quo and advocate for the recognition and compensation we deserve. Let's do this together.

I invite you to share your thoughts, experiences, and ideas in the comments below. Let's use our collective voices to make a difference. And if this message resonates with you, I encourage you to share it with your network. Together, we can change the narrative.

Are E-Bikes and E-Scooters Making Our Cities Less Accessible?

A series of E-bikes and E-scooters strewn about on the ground obstructing walkways.

Ladies and gentlemen, gather 'round, for I have a tale to tell. It's a tale of two-wheelers, those silent, sneaky, sidewalk-hogging e-bikes and e-scooters. They're the new-(ish) kids on the block, zipping around our cities, promising a greener future, and making pedestrians jump out of their skins. But, oh boy, they're not just giving pedestrians a good scare, they're turning our sidewalks into obstacle courses for the disabled community.

Now, let's take a trip to Seattle University, where e-bikes and scooters have exploded onto the campus scenery like a bad rash. The Spectator at Seattle University’s Natalie Kenoyer reported last fall that these contraptions from companies like Lime and Bird are strewn across campus like some kind of modern art installation, blocking ramps and walkways. It's like a bad game of Tetris where the blocks are e-bikes and e-scooters, and the players are disabled individuals just trying to get from point A to point B.

The problem isn’t limited to college campuses, either. Canine Companions® Pico and I encounter them almost daily in Washington, D.C. and when we travel across the country.

And it's not just a problem here in the U.S. Across the pond in the UK, a new report by think tank Policy Exchange tells a similar tale. Disabled parliamentarians are calling out the councils and the Department for Transport (DfT), United Kingdom for their "passivity." It's like they're saying, "Hey, we didn't sign up for this level of Extreme Sidewalk Survivor!"

So, what's the solution? Well, Policy Exchange suggests fining users who leave their e-bikes or e-scooters obstructing the pavement. I mean, if you can't park it, don't ride it, right? In Seattle ride-sharing companies work in collaboration with the city to establish e-bike and scooter use regulation zones as a condition of their operation. However, as with all regulation, it's only as good as its enforcement.

Let's reclaim our sidewalks from these two-wheeled terrors. Let's make our cities accessible for all, because everyone deserves the right to navigate their city without feeling like they're on an episode of Wipeout.

Remember, sidewalks are for walking, not for your discarded e-bike. Let's make our cities accessible again and ensure that no one feels like a second-class citizen in their own city. And for the love of all that is good, learn to park your e-bike.

Dumped e-bikes ‘dangerous’ for the disabled, think tank report finds

From Inclusion to Exclusion: The Impact of Remote Work Reduction on Disabled Employees

A desktop computer sitting on top of a wooden desk.

As we navigate the post-pandemic world, many companies, including Farmers Insurance Group, Meta, The Walt Disney Company, Lyft, and Amazon, are scaling back remote work options. This decision, while seemingly benign, has profound implications for employees with disabilities.

The shift to remote work during the pandemic was a boon for many disabled employees. It eliminated commuting challenges, provided a comfortable work environment, and offered flexibility for medical appointments. The rollback of remote work threatens to undo these gains, potentially pushing disabled employees out of the workforce.

Meta's recent decision to require employees to return to the office three days a week starting in September is a case in point. A Meta spokesperson stated, "We're committed to distributed work, and we're confident people can make a meaningful impact both from the office and at home." However, the decision to limit remote work options contradicts this statement, particularly for disabled employees for whom "home" is not just a convenience, but a necessity.

Mark Zuckerberg, Meta's CEO, hinted at this change when he said that their internal analysis showed engineers who work in person "get more done." This perspective, while potentially valid for some, fails to consider the unique circumstances of disabled employees. For them, the ability to work remotely isn't about productivity alone; it's about accessibility and inclusion.

The scaling back of remote work options by these major companies sends a disheartening message to disabled employees: our needs are secondary. It's a stark reminder that the corporate world still has a long way to go in truly embracing diversity and inclusion.

We must advocate for a more inclusive approach to work arrangements, one that recognizes the unique needs and contributions of all employees, including those with disabilities.

Remote work should not be seen as a temporary pandemic measure, but as a permanent option that can foster a more diverse and inclusive workforce.

A New CEO Says Employees Can’t Work Remotely After All, and They Revolt

How I Learned to Stop Worrying and Love the Plane

A UK-based consortium has created a cabin concept that allows wheelchair users to use their own chair when flying on airlines

Greetings, fellow readers! I'm your friendly neighborhood wheelchair user, navigating the world with everyone’s favorite 70-pound Lab Retriever, Canine Companions® Pico. Over the near decade that we’ve been matched, we have a knack for finding ourselves in the most absurd situations.

Let's talk about flying. Not the Superman kind, but the "strapped into a metal tube hurtling through the sky" kind. It's a bit like a roller coaster, except the ride lasts for hours and there's no overpriced keepsake photo afterward proving you survived.

Now, imagine doing this while also wondering if your legs (aka my wheelchair) will still work when you land. It's like playing a game of "Wheelchair Roulette". The stakes? A cool $20,000. That's right, folks. My wheelchair costs more than a used car, and I'm entrusting it to the same people who routinely lose luggage on direct flights. In 2022 alone, 11,389 wheelchairs were mishandled by US airlines, according to the U.S. Department of Transportation February 2023 Air Travel Consumer Report.

But let's not forget my trusty sidekick, Pico. He's the Batman to my Robin, the peanut butter to my jelly, the...well, you get the idea. He's my rock, especially when turbulence hits and I'm clutching the armrests like I'm trying to strangle them. This is where the spasticity from CP can be extra fun.

Now, here's the good news. Delta Air Lines and Air 4 All are stepping up their game. They're developing a seat that allows us wheelchair users to stay in our chairs during the flight. Debuting on June 6 at the Aircraft Interiors Expo, this prototype has been a longtime coming. As PriestmanGoode director Daniel MacInnes told Insider, "Offering equal access to comfort, safety, and dignity for all passengers has always been our objective for Air 4 All."

This is a game-changer, folks. No more playing "Wheelchair Roulette". No more being transferred from chair to chair like a game of musical chairs. Just me, my wheelchair, and my trusty canine sidekick, cruising at 35,000 feet.

So, here's to Delta, Air 4 All, and all the wheelchair users who dream of flying comfortably. Keep flying high, my friends. And remember, the sky's the limit...unless you're in an airplane. Then it's more like 35,000 feet.

Share your thoughts, experiences, or your favorite airplane food (if such a thing exists) in the comments below. Let's get the conversation rolling!

Navigating the Concert Jungle: The Untold Struggles of Disabled Music Lovers

Taylor Swift performs during The Eras Tour at Gillette Stadium on May 20, 2023 in Foxborough, Massachusetts.

As a wheelchair user and partner to Canine Companions® Pico, I cherish the excitement of live concerts. However, my experiences are frequently marred by an under-the-radar struggle: securing accessible seating. This problem, largely overlooked by mainstream media, affects numerous individuals in the disability community. While Ticketmaster frequently garners attention for mishandled public on-sales or excessive fees, leading to an unusual apology in January, the hardships faced by disabled concert-goers rarely draw attention. This reality became glaring during the recent Taylor Swift Eras Tour.

The Americans with Disabilities Act mandates that approximately 1% of a venue's seating should be disability-accessible. Yet, ticket brokers often abuse this policy, disadvantaging those of us with a genuine need for these seats. During the Eras Tour, disabled fans found themselves competing for a meager 0.005% of seats. As disability rights advocate Amy Webb accurately predicted to Cosmopolitan before the public on-sale, "For the disability community, it's going to be nearly impossible."

When rain fell at Gillette Stadium Saturday, Swift decided to persist with the show. While this might have augmented the spectacle for some, it jeopardized the safety and well-being of disabled fans. Our electronic medical equipment, much like Swift's piano, isn't designed to endure a downpour. Disabled fans found themselves in a no-win situation.

The struggle for accessible seating isn't simply about securing a place at a concert. It's about our right to partake in public life and enjoy the same experiences as everyone else. It's about acknowledging that accessibility is a right, not a privilege.

The ADA exists to ensure that we can access venues and live our lives as the varied individuals with diverse interests we are. However, the reality often deviates from this ideal. Laws designed to protect us from unnecessary disclosure of our disability status paradoxically open the door for abuse. It's not uncommon to see disabled seating suddenly appear on third-party sites like Vivid Seats and StubHub at inflated prices following a public on-sale. With little recourse, the only deterrent to such behavior is a guilty conscience, as these folks knowingly exploit fans who often live on fixed or limited incomes. Profit margins often overshadow these considerations. The lack of enforcement and systemic abuse of this honor-system policy by ticket brokers suggest that we have a long road ahead.

Artists, venues, and ticketing platforms must do more to ensure that everyone, regardless of physical abilities, can enjoy live music. The industry must transition toward inclusivity and accessibility for all.

As Webb fittingly said, "When systems fail us, it's the community that steps up."

#Accessibility #LiveMusicForAll #TaylorSwiftErasTour #ConcertAccessibility #DisabilityRights

Carson Briére apologizes for damaging wheelchair after 'disturbing video' surfaces

Mercyhurst Lakers center Carson Briére just went viral for all the wrong reasons. (AP Photo)

“It might seem like nothing more than immature, drunken behaviour, but what Briere and his friends did is a frightening example of complete disregard for the humanity of disabled people,” Emily Ladau told Yahoo Sports Canada. “As a wheelchair user, even when I'm not physically sitting in it, I consider my chair an extension of my body. Damaging my wheelchair means you're disrespecting me and taking away my freedom of movement. The issue here isn't just damaged property or bad choices; it's that ableism, privilege, and entitlement are on full display.”
-Ian Kennedy, Yahoo Sports

This story about Carson Briére, student athlete at Mercyhurst University and son of Philadelphia Flyers interim GM Daniel Briére, is beyond disturbing. Not only is the ableism and entitlement on full display, so is the complete disregard for autonomy. Wheelchairs are expensive medical equipment costing thousands of dollars and can take upward of a year to obtain depending on fitting, measurements, insurance denials, etc.

I've watched this video several times in disbelief. I was shaking with fear not only for the user whose wheelchair was so callously disrespected, but also with the stark reminder that this could have happened to me. This is a nightmare for every wheelchair user who has been forced to navigate inaccessible environments.

Emily is right. Our medical equipment be it a wheelchair, a cane, a scooter, or a service dog like Canine Companions® Pico are extensions of us and our body. Through that lens, this is beyond the destruction of property. This is assault. Briére's actions have caused a loss of bodily autonomy that may take months to regain along with the financial and emotional impact.

The laws have not caught up yet, however.

This experience highlights so many injustices; inaccessibility, ableism, privilege, entitlement and a lack of empathy and understanding around disability.

#disabilityawareness #disabilityrights #disability #medicalequipment #sports #hockey #flyers

Junk Fees Hit Disabled People Too

The disability community is heavily impacted by the Crip Tax, whether it’s in the form of so-called junk fees or simply a higher cost of living. The toll is physically, emotionally, mentally, and financially exhausting simply fighting for our right to exist.

"President Biden dedicated quite a bit of airtime in his State of the Union address to the Junk Fees Prevention Act, a push to limit hidden fees and surcharges in a number of industries. The proposed legislation would curtail companies from overcharging on things like extra resort fees at hotels, service fees at concerts and sporting events, and added costs charged by airlines so that family members can sit together."
Deepa Shivaram, Emily Olson–NPR

President Biden talked extensively about the Junk Fee Prevention Act in his State of the Union Address. While the White House cited research from the Consumer Financial Protection Bureau highlighting the racial disparities of added fees, the disability community is also adversely affected. We routinely pay the colloquial “Crip Tax” simply to level the playing field.

Consider the most recent data released by the U.S. Department of Transportation that found airlines mishandled 941 wheelchairs or scooters in November of 2022; or roughly 1.5% of mobility equipment. While that number may seem small to non-disabled people, if those were your legs, you’d be more cautious.

Uber settled a multi-million dollar lawsuit brought by the U.S. Department of Justice last year over the illegal practice of wait time fees— disproportionately affecting disabled passengers.

Our hotel rooms often come with increased costs, too. The ADA prohibits charging more for accessible rooms, yet hotels and travel sites try to get away with it anyway hoping uninformed travelers will simply not know the law or be too exhausted to contest the rate hike. I recently lost hours on the phone with American Express resolving excess fees associated with booking an accessible room through their travel portal at Virgin Hotels.

The Biden administration talked about excessive ticketing fees for concerts. Here again, the disability community faces added expenses. We often pay more for our seats because venues do little to verify that the limited quantity of accessible seating goes to disabled patrons rather than scalpers charging a premium. I’m working with local venues in Washington D.C. including Capital One Arena to help address this challenge.

These are just the simple things. Pricer items like healthcare, transportation, and medical equipment are essential, which is why I was glad to see the administration tout a proposed rule change simplifying reporting requirements for the more than 7 million disabled people who receive monthly Supplemental Social Security Administration benefits.

The disability community is heavily impacted by the Crip Tax, whether it’s in the form of so-called junk fees or simply a higher cost of living. The toll is physically, emotionally, mentally, and financially exhausting simply fighting for our right to exist.

Spastic Chatter: Episode 90 Disability Humor, Employment, & More

Thank you Whitney Bailey for the opportunity to join Spastic Chatter. What a fun and honest deep dive into all things Cerebral Palsy and quite the kickoff for 2023!