Navigating the Ableist Undertones of the Return-to-Office Movement

Two men in suits, sit across from each other at a conference table for a meeting.

October, a month dedicated to raising awareness about disability employment, has always been pivotal. But this year, it’s underscored by a concerning trend in the corporate world: the push to return to the office.

A recent article in Fortune by Paige McGlauflin and Joseph Abrams highlighted a startling reality: "90% [of CEOs] plan to reward those who work in person with favorable assignments, raises, and promotions.” This approach, while seemingly a strategic move to revitalize in-office culture, casts a shadow of exclusion over the disability community, particularly when we’ve seen the positive impact remote work has had on disability employment.

Since becoming full-time remote in 2020, I’ve experienced firsthand the energy conservation, reduced chronic pain, and enhanced focus that comes with remote work. It's not just a convenience; it's a necessity for many of us in the disabled community.

The pandemic brought an unexpected boon for us, enabling more disabled individuals to participate in the labor market effectively. But the current push for physical presence in the office, especially when tied to career progression, is not just a step backward; it’s a leap.

Julie Kratz, in her insightful Forbes article, emphasizes the importance of “practicing everyday acts of inclusion, shifting your language, getting respectfully curious, and staying committed to allyship long-term” But where does penalizing remote work fit into this inclusivity?

The disability community is not a monolith. Our needs, capabilities, and contributions are as diverse as we are. We’ve navigated a world that often forgets us, innovating and adapting, but the message sent by rewarding physical presence is clear: our efforts, adaptability, and skills are second to our ability to be present in the office.

It’s time to challenge this narrative. Let’s foster a dialogue that pushes companies to recognize value beyond physical presence, ensuring that disabled employees are not relegated to second-class citizenship in our own jobs.

CEOs are so desperate for a return to office that they’ll give employees who come back raises, promotions

Beyond the 1%: Amplifying Disabled Voices in Hollywood and Halls of Power

From left: Zayre Ferrer, Monica Cecilia Lucas and Gisselle Legere.

In the vibrant tapestry of our society, the disabled community weaves a narrative often left unexplored, yet profoundly impactful. As we celebrate National Disability Employment Awareness Month, let’s delve into the realms of representation, adaptability, and the stark disparities in political representation for disabled individuals.

“Roughly 20% of Americans live with a disability, yet less than 1% of Hollywood writers are disabled,” a stark revelation from the Inevitable Foundation. The recent Writers Guild of America West deal, promises to address specific issues impacting disabled writers in Hollywood most. Gisselle Legere, a Cuban American writer, heralded the WGA’s victory in setting a minimum number of writers who must be staffed on shows as the “biggest win,” illuminating a path toward more inclusive representation in the writers' rooms.

In the political arena, the narrative unfolds similarly, yet with its unique challenges. ChrisTiana ObeySumner MPA, MNPL, a multi-disabled Seattle City Council candidate, embodies the resilience and determination that disabled candidates bring to the political table. Yet, systemic barriers and ableist backlash often stymie their journey. A mere one in 10 elected officials have disabilities, according to a 2018 study from Rutgers University, underscoring a glaring disparity in representation that demands our attention and action.

Sarah Blahovec, co-founder of Disability Victory, astutely observes, “Disabled people are adaptable. We’re creative. We’re problem-solvers. And we’re resilient because every day we navigate a society that is not built for our needs.” These are not just qualities; they are a testament to the untapped potential that disabled individuals bring to leadership roles in every sphere of our society.

As we navigate through NDEAM, let’s champion for more than just hiring or electing disabled individuals. Let’s advocate for providing an upward path toward mobility in their jobs, giving them a chance to flourish, and arming them with the tools they need to be successful. Let’s ensure that the diverse pool of disability is represented in all decision-making rooms, from the board room, to the writers room, to elections. We need to be in the room where it happens.

In the spirit of fostering a society where every thread is valued, let’s weave a narrative where disability is not seen through a lens of limitation, but a spectrum of possibilities and diverse perspectives. Let’s be the catalysts for a future where equity is not just a metric but a lived reality.

What the WGA deal with Hollywood studios means to writers with disabilities

Empowerment on Four Legs: Celebrating National Service Dog Month

Ryan, next to service dog Pico, poses with D.C. Councilwoman Brooke Pinto, Canine Companions puppy raiser, Jaime Werner and her service dog in training, Boston following the recognition of National Service Dog Month by the D.C. City Council

Yesterday, I was honored to witness the formal recognition of National Service Dog Month by the Council of the District of Columbia, a testament to the incredible work of organizations like Canine Companions®.

Since its inception in 1975, they have placed 7,454 graduate teams. Just this year, 413 working dog teams have been placed, and there are currently 2,706 active graduate teams nationwide. Behind these numbers are countless stories of individuals finding newfound independence and confidence, thanks to their service dogs.

But these achievements aren't just the result of the organization's efforts alone. A vast network of 4,700 active volunteers nationwide, including 1,292 volunteer puppy raisers and 138 volunteer breeder caretakers, contribute to this mission. Yesterday, I had the pleasure of meeting Jaime Werner, a volunteer puppy raiser whose dedication ensures that service dogs like Pico are well-trained and ready to assist individuals like me. She is currently raising her sixth dog, Boston.

Councilwoman Brooke Pinto's introduction of this legislation is a significant step forward in recognizing the importance of service dogs in our community. Navigating the world with myriad disabilities can be tricky, and Pico has been instrumental in my daily life.

As we celebrate National Service Dog Month, let's remember that independence shouldn't be limited. Every individual, regardless of their challenges, deserves the chance to lead a life with greater autonomy. And with the support of service dogs and the organizations that train them, this vision is becoming a reality for many.

Thank you, Canine Companions, for your unwavering dedication. And to Pico, my loyal companion, thank you for being my eyes, ears, and a never-ending source of joy and humor.

Why Relaxed Dress Codes Can Be a Game-Changer for People with Disabilities

Sen. John Fetterman (D-Pa.) arrives for a vote at the U.S. Capitol May 1, 2023.

In light of the recent changes to the Senate's dress code, as detailed by Axios and Rolling Stone, it's essential to view this shift as more than just a fashion statement. This change, announced by Senate Majority Leader Chuck Schumer and reportedly inspired by Senator John Fetterman of Pennsylvania, is a reflection of a reasonable accommodation for someone with a disability.

Sen. Fetterman, who has been candid about his struggles with depression, is protected under the Americans with Disabilities Act. Changes to dress codes are considered a reasonable accommodation, and this should be seen as a progressive step for the disability community. Societal standards, often set by non-disabled neurotypical individuals, can be both physically and mentally taxing for those with disabilities. As someone with cerebral palsy and fine motor challenges, I can attest to the significant energy and mental effort required to don formal attire. My clothing choices are often a reflection of my energy levels, not my work ethic or capability.

Senator Susan Collins humorously threatened to wear a bikini to work in response to the relaxed dress code. Meanwhile, Senator Schumer officially altered the rules around appropriate attire, instructing the Sergeant at Arms to cease enforcing guidelines requiring business attire on the floor. This change allows lawmakers like Pennsylvania’s John Fetterman to embrace casual clothing without violating protocol. Fetterman's attire has been a part of his image throughout his political career. After taking a medical hiatus to seek treatment for clinical depression, he's chosen comfort over costume. This decision, though not directly referencing Fetterman, has irked some Republicans, leading to criticism of him.

In the disability community, we often use "spoons" as a metaphor to describe our energy consumption. It can take someone with a disability significantly more energy to accomplish the same tasks as our non-disabled counterparts. A strict dress code can be challenging for people with disabilities to maintain consistently. My personal experience of ditching formal wear for the office has resulted in increased energy that I can redirect toward my actual work. Being comfortable allows me to be more relaxed and focused. I applaud Senator Schumer for his recent decision and hope that those opposing this change can learn empathy.

Republicans Are Melting Down Over the Relaxed Senate Dress Code

Snapshots of Service: Pico's Dedication Amidst a Career of Change

Pico stands behind the American flag for his professional portrait at the US Department of Labor

As I sit at my desk, the hum of assistive technology filling the room, I'm reminded of the many challenges and triumphs I've faced as a disability advocate and federal employee. My early days at the U.S. Department of Health and Human Services (HHS) saw me promoting the newly minted Obamacare, a transformative period in our nation's healthcare landscape. Later, at the USPTO, I was fiercely protecting intellectual property, ensuring the sanctity of innovation and creativity. Today, I promote the impactful mission of the U.S. Department of Labor, protecting our nation's workforce.

Yet, amidst these professional milestones, there's been a constant, loyal presence by my side for the past decade - my service dog, Pico.

September marks National Service Dog Month, a time to honor the incredible animals that transform lives daily. Pico, a graduate of Canine Companions®, joined me after my tenure at HHS. As a wheelchair user with a visual impairment, navigating the world can be daunting. But with Pico, every challenge becomes surmountable. His unwavering support, especially in the workplace, has been nothing short of amazing.

Invisible disabilities, like my chronic pain, often go unnoticed. But Pico sees it all. He senses my discomfort, offering solace with a nuzzle or a comforting presence by my side. He's more than just a service dog; he's a confidant, a protector, and a never-ending source of comedy.

Recently, thanks to the talented Shawn Moore, Pico and I had a moment that encapsulated our journey. As the camera clicked, capturing Pico in his full professional glory, I felt a swell of pride. It was a moment of recognition, not just for Pico's service but for every service animal that has made a difference in someone's life.

To Pico, I say, "Thank you." Thank you for your unwavering service, for the moments of joy, and for the challenges we've overcome together. Here's to many more years of partnership, advocacy, and making a difference.

Join me in celebrating National Service Dog Month. Share your stories, honor these incredible animals, and let's continue the conversation on the importance of accessibility and inclusion in every workspace.

Kicking Off STEPtember Fundraising

As we dive into STEPtember, raising money for Cerebral Palsy Alliance Research Foundation, I am absolutely blown away by the support we've received. We've just kicked off, and guess what? We've already raised nearly $5,000! This incredible start is all thanks to YOU!

Your enthusiasm, support, and generosity have set an amazing tone for the month ahead. We've taken our first steps together, and with this momentum,
the journey ahead looks even more promising.

A special shoutout to those who've already contributed and spread the word. Your belief in our cause and commitment to making a difference is truly amazing.

Let's keep this energy up and continue to step up for Cerebral Palsy research.

Remember, every step counts, and every donation brings us closer to our goal.
Thank you for being a part of this journey. Here's to a successful STEPtember!

Magic with a Side of Bureaucracy: Navigating Theme Parks and Airlines with Disabilities

Theme Park goers are seen on a rollercoaster

Growing up in sunny California, I was fortunate to be surrounded by some of the world's most iconic theme parks - Disneyland Resort, Universal Studios Hollywood, and Six Flags Magic Mountain. These parks were more than just places of entertainment; they were sanctuaries where I felt included and normal amongst my peers. As someone with multiple disabilities, these visits were moments of liberation where I could feel free to be a kid without being overly self conscious or restrained by disability.

Back in the day, it was standard practice to obtain a visitor's pass from guest services, allowing us to enter from the exit and avoid the long wait times. But times have changed.

Now, Universal is introducing a new protocol. As Michelle Diamentper writes in Disability Scoop, "Starting this week, however, Universal Orlando Resort and Universal Studios Hollywood will require that individuals apply for a special card known as the Individual Accessibility Card prior to their visit in order to qualify for an Attraction Assistance Pass." This card, issued by the International Board of Credentialing and Continuing Education Standards (IBCCES), requires documentation detailing the type of accommodations requested, at least 48 hours before arrival.

Disney by contrast allows disabled patrons to receive return times in the theme park’s mobile app comparable to the ride’s posted wait time.

While new policies aim to prevent misuse, they inadvertently create additional hurdles for disabled patrons. As Jennifer Shelton told The Wall Street Journal, “It’s just another thing we have to think through when travel is already hard and we’re trying to make it as fun as possible.”

Flying, another aspect of my travels, has its own set of challenges. With Canine Companions® Pico by my side, I've had to navigate the maze of paperwork required by the 2020 update to Air Carrier Access Act. While I pride myself on being organized and adept at bureaucracy, there are days when the energy simply isn't there, especially when I travel. The added burden of paperwork is a reality many disabled individuals face, deterring us from accessing services and entertainment. Open Doors Organization is helping streamlining the process for airline passengers flying with Alaska Airlines and JetBlue, still the added layers can be exhausting when you're already depleted from the stress of travel.

While measures to prevent system abuse are essential, it's crucial to ensure they don't inadvertently make life harder for those genuinely in need. As we advocate for more inclusivity, it's essential to strike the right balance, ensuring everyone has the chance to experience the magic of theme parks and the freedom of travel.

Some Travelers Abused Disability Accommodations. Now Comes the Crackdown

Why ADA Compliance Doesn't Always Mean Accessibility

Wheelchair users are seen in the Rose Garden at the White House as President Biden delivers remarks during an ADA celebration.

For the vast majority of my life I've navigated the intricate maze of the Americans with Disabilities Act (ADA). Designed to ensure equal access for all, the ADA has been instrumental in ensuring the rights of disabled people. Yet, in practice, the reality often falls short of the promise. Julie Reiskin, a fellow wheelchair user, captured this sentiment perfectly, telling USA TODAY, "It would be really nice if I could look at a website and have reliable information."

This disparity between expectation and reality isn't just about websites. It extends to physical spaces too. For instance, booking an ADA-compliant hotel room might promise a slightly bigger bathroom, but what's the use if I can't even enter the room due to a heavy door or lack of actuators? This isn't just an inconvenience; it's a barrier that hinders true accessibility.

My personal experiences mirror those of many others in the disability community. Just this summer, I voiced my concerns about a local Starbucks, a place I've frequented for nearly a decade. Their response? They were "in compliance with the ADA." But true access goes beyond mere compliance. Deborah Laufer's journey, involving over 600 cases filed for similar reasons, and now a pending Supreme Court of the U.S. case remarked, "I sometimes ended up sleeping in my car because I could not get an accessible room at a hotel."

The crux of the matter is that the ADA should be viewed as a starting point, not the end goal. True accessibility and inclusion mean going beyond the minimum requirements. As Shira Wakschlag of The Arc of the United States emphasized to Disability Scoop, "ADA testers are essential to ensuring the rights of people with disabilities are enforced and protected."

In our quest for a more inclusive world, let's not just aim for the floor; let's reach for the ceiling. Let's not just be compliant; let's be truly accessible.

Following the Supreme Court overturning of affirmative action earlier this summer, many disability advocates, myself included, expressed concerns about the ADA being next on the chopping block. Sadly, it looks as though our fears were not unfounded.

I invite you to join the conversation, share your experiences, and together, let's push for a world where accessibility is not just a legal requirement but a heartfelt commitment.

'Sleeping in my car.' This Supreme Court case could change how disabled Americans book hotel rooms

Driving Change: The Role of Autonomous Vehicles in Disability Advocacy

Sharon Giovinazzo, CEO of LightHouse, a nonprofit organization for the blind and visually impaired, opens the door of a Waymo autonomous car with her guide dog Pilot in San Francisco on Monday. | Source:Jeremy Chen/The Standar

With the recent news out of California surrounding regulations for autonomous vehicles, I’ve been thinking a lot about the future of transportation and the intersection of independence, safety, and innovation. Autonomous vehicles have the power to be transformative, and their impact and inclusion needs to be assessed from all sides.

The rise of robotaxis in cities like San Francisco has sparked a myriad of opinions. Sharon Giovinazzo, CEO of the nonprofit LightHouse for the Blind and Visually Impaired, told The San Francisco Standard, “It truly has the power to transform lives.”

For many of us with mobility challenges, the promise of a vehicle that doesn't fuss about Canine Companions® Pico or require assistance for boarding is tantalizing. It represents more than just transportation; it's a symbol of independence and choice.

However, my experiences with rideshare companies like Lyft and Uber have not always been smooth. I've faced challenges, from drivers refusing rides because of my service dog to the sheer lack of accessible vehicles. These experiences underscore the need for more inclusive transportation solutions.

Yet, the promise of choice is also fraught with other practical considerations. The California Council of the Blind has voiced concerns about passenger safety, especially for the visually impaired. They believe that the technology needs to advance further to ensure rider safety. As someone who relies heavily on assistive technology, I understand the importance of ensuring that these vehicles are not just innovative but also safe and reliable.

But there's hope on the horizon. Companies like Cruise are actively working on developing wheelchair-accessible vehicles, like the Origin Mobility. This is a step in the right direction, ensuring that the future of transportation is inclusive.

As we stand on the cusp of this transportation revolution, it's crucial to ensure that the voices of the disability community are not just heard but actively included in the conversation. After all, for many of us, it's not just about getting from point A to B; it's about doing so with dignity, independence, and safety.

Let's continue this conversation. What are your thoughts on the rise of robotaxis and their potential impact on the disability community?

Do Robotaxis Benefit People With Disabilities? San Francisco Activists Are Splitng-with-disabilities/

Adaptable, Flexible, Unstoppable: Eddie Ndopu's Message of Hope and Strength

Time Magazine Person of the Week Cover with Eddie Ndopu

In our journey through life, I find myself reflecting on the dual narratives that society often imposes on those with disabilities. On one hand, there's the story of overcoming, of achieving not because of our challenges but in spite of them. On the other, there's the reality we live every day: it's not our disabilities that hinder us, but society's ableist attitudes and approaches.

Eddie Ndopu, a United Nations and disability advocate living with spinal muscular atrophy encapsulates this sentiment perfectly. As he rightly points out in a recent interview with TIME, "disability has been the greatest offering and gift of my life." It's a sentiment I resonate with deeply. Our challenges make us adaptable, flexible, and give us a unique lens through which we view the world.

However, the societal narrative often deviates from this perspective. We're told there's a "standard" way of doing things, and any deviation is seen as "special." Requests for reasonable accommodations or basic access rights are often met with resistance, with claims of high costs or the unfairness of providing for one and not for all. This mindset fails to distinguish between equity and equality. While equality ensures everyone gets the same resources, equity ensures everyone gets the resources they need to succeed. And for those facing challenges, this often means working twice as hard for half the recognition.

The truth is, as Eddie Ndopu highlights, "the more barriers that I have been able to break down, the more barriers have awaited me on the other side." This resonates deeply with me. Despite our accomplishments, we're still faced with systemic inequalities and prejudices. We're often seen as "less than" or "incapable" due to our challenges. But as Eddie and countless others have shown, our challenges can be our greatest strengths.

In many ways, living with disabilities is like playing a never-ending game of whack-a-mole. As soon as one challenge is overcome, another pops up. But it's essential to keep the conversation going. The more we talk about our experiences, advocate for our rights, and normalize these discussions in all spheres of life, the closer we get to a world where challenges, accommodations, and access are seen as standard, not special.

As we continue to advocate, let's remember that our challenges don't define us – they refine us. They make us stronger, more resilient, and more empathetic. And as we push for a more inclusive world, let's celebrate not just our achievements but the unique perspectives and strengths that come with our experiences.

Eddie Ndopu on How Disability Helped Him Rethink Excellence